Children aged 3 to 22 years who are experiencing Fragile X syndrome-associated behavioural issues may be eligible to participate in a clinical trial in Australia. The RECONNECT study is seeking to evaluate the efficacy of a topical gel developed by Zynerba Pharmaceuticals in helping with the Fragile X-associated behaviours. The study remains open to participants through to the end of 2024.
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Our FX Webinar series 2024 commences shortly and sees the return of several regular presenters, including Kate Strohm and Dr Marcia Braden PhD. Over the coming weeks Kate Strohm will present two webinars on supporting siblings of children or adults with Fragile X syndrome. In April and May Dr Marcia Braden PhD will discuss the specific challenges Fragile X syndrome can present for females, and present a new discussion on differentiating Fragile X syndrome and autism spectrum disorder.
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It was an adrenaline-fuelled spectacle on Sydney Harbour on Sunday 18th February as close to 400 paddlers took on the 23rd annual Manly Wharf Bridge to Beach challenge. This iconic 11km race, one of the biggest on Australia’s paddling calendar, delivers thrills and spills while supporting Fragile X Association of Australia in raising much-needed funds for the Fragile X Family Support role!
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Concise (7-minute) version of our classic "explainer" about Fragile X syndrome, featuring Australian and international experts in field. Ideal introduction to Fragile X for parents, carers and everyone supporting a child with Fragile X syndrome.
Fragile X Podcasts
This resource remains our classic "explainer" about Fragile X syndrome, featuring Australian and international experts in field. Ideal introduction to Fragile X for parents, carers and everyone supporting a child with Fragile X syndrome.
Fragile X Podcasts
Beyond the sheer exhilaration of paddling across Sydney's beautiful Harbour, the Bridge to Beach paddle race is dedicated to supporting and raising funds for Fragile X Association of Australia, adding a meaningful purpose to this thrilling paddling experience. This year race sponsor Shaw and Partners has pledged to MATCH, $ for $, the first $5,000 raised, This incredible support will help us reach our fundraising target of $10,000. You can help is us reach our fundraising goal and activate the matched donation by Shaw and Partners by making a donation online
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Our knowledge bank on Fragile X is extensive! Ideal for early learning about Fragile X, or a refresh. Catch up now, before our FX Webinar Series kicks off again for 2024. We've hosted and recorded many workshops and webinars over the years, featuring leading international and local specialists in Fragile X syndrome and the Fragile X premutation. The video recordings of webinars and workshops are available on our youtube channel, and some of the recordings are podcasts on our channels on Spotify and Apple Podcasts.
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The Manly Wharf Bridge to Beach stands as one of Australia’s premier open water paddling events, celebrated globally for its breathtaking spectacle. It's an 11 km paddle across Sydney Harbour, sponsored by Shaw and Partners Financial Services and organised every year by Dean Gardiner and the team from Oceanpaddler. Fragile X Association of Australia is thrilled to be charity partner for this event, raising funds for our important Family Support Counselling service.
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Wrapping up 2023 and a look at what's on our horizon for 2024! Our research study on Adults/Ageing and Fragile X syndrome. The Zynerba RECONNECT clinical trial extended to March 2024. Our webinar program for 2024. Disability Expos 2024. Congratulating the FXAA Achievement and Volunteer Award winners for 2023. And profiling online learning modules about intellectual disability & mental health; and sensory sensitivities in Fragile X syndrome.
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Winning ticket numbers in the FX Raffle which was drawn at the office of Fragile X Association of Australia, Suite 204 20 Dale Street BROOKVALE NSW 2100 on Saturday 9 December at 11am.
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With Dr Jennifer Epstein PsyD., from webinar recording December 2023. Communication, sensory, motor, physiology & cognitive delays are commonly associated with Fragile X syndrome. These delays can pose challenges for building toileting skills in childhood and retaining those skills throughout life. This session focuses on successful toileting skills development for children over the age of 10 and adults.
Fragile X Podcasts
Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.
