Webinars coming up in May and June

April 27th, 2024

Our FX Webinar program in 2024 features new additions to the program.   For the first time in our series Dr Marcia Braden PhD will present on Fragile X syndrome and autism spectrum disorder and several webinars will address planning for the future for a child or adult with Fragile X syndrome.

With thanks to Zynerba Pharmaceuticals for an educational grant supporting Dr Braden’s webinars for Fragile X Association of Australia, and with thanks to the Qantas Foundation Side by Side grant program for supporting several of our webinars in 2024 and early 2025.


DR MARCIA BRADEN PHD
Dr Marcia Braden PhD is a licensed psychologist and former educator based in the US, and internationally known for her knowledge of traits associated with Fragile X syndrome. Dr Braden will present several webinars/Q&A events in 2024 including:

FRAGILE X SYNDROME AND AUTISM SPECTRUM DISORDER DIFFERENTIATED
Saturday 25 May 2024,   9am AEST
Dr Braden will discuss the similarities and differences between Fragile X syndrome and Autism Spectrum Disorder and strategies to support success in daily living.

This webinar will be ideal for parents, caregivers, educators and disability support teams who have an individual with Fragile X syndrome and autism spectrum disorder in their care.
REGISTER IN ADVANCE HERE

This event will be run live, and the video recording will be available on our YouTube channel  The audio will be available on our channel on Spotify and Apple Podcasts

This webinar is supported by an educational grant from Zynerba Pharmaceuticals.


Continuing our series of webinars on future planning, we are delighted that Margaret Duncan, Principal Lawyer Duncan Legal joins us to present on disability estate planning and special disability trusts.   Both sessions will be LIVE-ONLY.

DISABILITY ESTATE PLANNING – Thursday 13 June 2024, 7pm AEST
60-minute presentation followed by Q&A
REGISTER IN ADVANCE  HERE 

Margaret will examine 10 disability specific issues to consider when formulating Wills and Powers of Attorney that are to provide for a person with a disability.      This presentation will provide information re:  types of protective trusts, who to appoint as trustees, asset protection strategies, preservation of pensions/government benefits, superannuation & life insurance beneficiary nominations, and some accommodation options for a family member with a disability.

SPECIAL DISABILITY TRUSTS – Thursday 27 June 2024 7pm AEST         
45-minute presentation followed by Q&A
REGISTER IN ADVANCE  HERE 

In this presentation Margaret will explain Special Disability Trusts (SDT) as an option for persons with a more complex disability. This webinar will provide information as to: how to determine whether a SDT is appropriate; assessing eligibility; advantages & limitations; fund limits; the impact of asset and income testing; how to set up, operate and end a SDT; and some wider estate planning considerations.

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Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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