Catchup on the latest news in the Winter 2026 edition of our newsletter.
* Lighting up World Fragile X Day
* Research Roundup – What’s on the horizon for treatments for Fragile X syndrome; outcomes of some studies on the FX premutation in women; and opportunities to contribute to research projects
* New information resources on FXPOI and FXTAS (conditions associated with the Fragile X premutation)
* My Not So Fragile World – new children’s book published on 22 July to celebrate World Fragile X Day!
* Congratulations and thanks to our community – raising funds to support the work we do, and volunteering with us at events to improve understanding of Fragile X.
* And we want to hear what matters to you. Your ideas and feedback will help guide how we support the Fragile X community into the future. Tell us what you value about Fragile X Association of Australia, what’s working well, what could be improved, and where you think we could place greater focus in the future.