FXAA Board nominations open to 11 November 2026

FXAA’s vision is that people living with Fragile X are connected, included, understood & empowered to live their best possible lives. Serving on the Board of FXAA as a volunteer director is a rewarding way to support the Fragile X community and to help shape the future direction and impact of our organisation. At our Annual General Meeting on Sunday 6 December 2026 five Board positions will be open for nomination. Four current Board members will re-nominate for a further term – Dr Lawrence Bott, Alison Evans, Andrew Fleming and Michael Miceli. One Board position will become vacant with the retirement of Prof W Ted Brown. Members of FXAA are encouraged to consider nominating to serve on the Board.

News

Annual General Meeting 2026 | Sunday 6 December 2026 3pm AEDT online

Dr Lawrie Bott, President of Fragile X Association of Australia, and the Board invite you to join us for our Annual General Meeting 2026 on Sunday 6 December 3:00-4:15pm AEDT (online). The AGM is always an important opportunity to reflect and report to our members on the past year and look to what’s ahead.  This year we’ll cover: * Celebration of the Fragile X community, including Achievement Awards and thanking our Volunteers. * FXAA’s programs and impact in 2026; * Treasurer’s Report and audited financials at 30 June 2026. * What our members told us in the Fragile X Community Survey 2026 * Election of members to the Board, with voting by online poll. * And we’ll take a look at what’s on the horizon for FXAA in 2027.

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FX NEWS WINTER 2026

All our latest news: * Lighting up World Fragile X Day * Research Roundup - What's on the horizon for treatments for Fragile X syndrome; outcomes of some studies on the FX premutation in women; opportunity to contribute to research projects * Information resources on FXPOI and FXTAS * My Not So Fragile World - new children's book * Congratulations and thanks to our community - raising funds to support the work we do, and volunteering with us at events to improve understanding of Fragile X. * And we want to hear what matters to you. Your ideas and feedback will help guide how we support the Fragile X community into the future Tell us what you value about Fragile X Association of Australia, what's working well, what could be improved, and where you think we could place greater focus in the future.

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Feedback | We want to hear what matters to you

Your ideas and feedback are important to us and will help guide how we support the Fragile X community into the future. Share your feedback with us: What do you value about FXAA? What's working well? What could be improved? Where you think we should place greater focus? The feedback survey takes about 10 minutes to complete. 3 Options: Online, Paper format, or Phone.

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Sensory Processing and Fragile X Syndrome: Building a Sensory Diet

With Bev Kadish, occupational therapist and founder of Write Start OT, from a webinar recording on 28 July 2026. Bev explains what sensory processing is, the eight senses behind it, and how to build and run a sensory diet at home.

Fragile X Podcasts

Webinar | Sensory Processing & Fragile X syndrome, 28 July

Bev Kadish is an occupational therapist who has extensive experience in supporting children with Fragile X syndrome and sensory sensitivities. In this presentation Bev will explain what Sensory Processing is and talk about the sensory sensitivities which are commonly experienced by people with Fragile X syndrome. Bev will talk about how a "sensory diet" of activities that are proactive or responsive can help a person remain calm and regulated. Bev will also provide practical strategies to help you support someone who has sensory sensitivities and Fragile X syndrome. Followed by live Q&A.

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Research Roundup 2026: Premutation, Women’s Health and New Clinical Trials

Four researchers share what is happening right now in Fragile X research: a new international registry for premutation carriers, what is being learned about the premutation in women, a project changing how families receive a genetic diagnosis, and an update on the clinical trials in the pipeline.

Fragile X Podcasts

Join the International Fragile X Premutation Registry: Enrol online

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22 July 2026 | Lighting up for World Fragile X Day

World Fragile X Day is an international celebration of Fragile X on 22 July every year. Here in in Australia we invite significant landmarks in each state and territory to celebrate by lighting up in our signature colour, ORANGE. Worldwide we expect to see hundreds of landmarks around the world celebrating! Including close to 100 in Australia! What’s lighting up near you, so far?? Check out our list of supporters. List current at 22 July 2026.

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Medications in Fragile X Syndrome | Dr Jonathan Cohen

With Dr Jonathan Cohen, specialist physician and Medical Director of Fragile X Alliance, from a webinar recording on 14 May 2026.

Fragile X Podcasts

FX News Summer 2025

FX News Summer 2025 edition, published December 2025. Catchup on our latest news. Achievement Awards. Update on FX research, and information on FXTAs and FXPOI. Resources which support the Fragile X learning style. Thanking our volunteers. And some great photos from 2025.

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FXAA Annual Report 2024-2025

Our Annual Report for 2025 was tabled at the Annual General Meeting held on 23 November 2025.  The work of Fragile X Association of Australia as a Health Promotion charity remains guided by our Strategic Plan 2022-2025 and we continued to make good progress against each of the four strategic pillars - Support & Connection, Empowerment, Advocacy and Education.  The Annual Report is a comprehensive roundup of our programs and activities in financial year 2024-2025. It covers:   Supporting the Fragile X community through advocacy, counselling, and peer connections.  Progress of the first Australian study to explore the health, wellbeing and support needs of adults with Fragile X syndrome as they grow older:  Fragile X Care | Adults and Ageing study.  Improving understanding of Fragile X syndrome and Fragile X Premutation Associated Conditions across the disability and health sectors.   Building knowledge and connections through our educational FX webinar series.   Lighting up Australia for World Fragile X Day on 22 July. A report from the Treasurer. And a thank you to our Supporters who make it possible for us to keep working towards our vision that people living with Fragile X are connected, included, understood and empowered to live their best possible lives.

Annual Reports