Endowment Fund Committee

The Fragile X Association Endowment Fund was established in early 2012 to enable funds to be invested in order to provide long term funding for the activities of the Association.

An Advisory Committee is responsible for making recommendations to the FXAA Board as to suitable investment decisions for the Endowment Fund from time to time.

  • Martin Davey (Chair) Martin is a retired chartered accountant who specialised in Audit and Corporate Finance. Previously a partner at Ernst & Young, he was Finance Director of the Schroders Australia property management business and subsequently Chief Financial Officer of the Sydney Futures Exchange prior to its merger with the Australian Stock Exchange.
  • John Kelleher, past President and Treasurer of Fragile X Association of Australia
  • Cynthia Roberts, director and President of Fragile X Association of Australia
  • Adam Lawrence-Slater, director and Treasurer of Fragile X Association of Australia

Survey for parents / carers of adults with Fragile X syndrome

FRAGILE X | ADULTS & AGEING. We're undertaking the first Australian study on the support needs, health & wellbeing of ADULTS with Fragile X syndrome. Our goal is to enhance quality of life for adults with Fragile X syndrome as they age. We invite parents or carers to participate in our SURVEY. The survey has questions about: 1. GENERAL HEALTH AND WELLBEING of the adult with Fragile X syndrome. 2. EFFECTIVENESS OF EXISTING SUPPORTS for the adult with Fragile X syndrome as they age. 3. FUTURE PLANNING concerns of families & carers who provide support 4. ANY GAPS IN SUPPORTS OR SERVICES which may impede best outcomes in care. From the information contributed through the Survey we will develop training modules for frontline carers and tools for advocacy. The Survey can be completed ONLINE, in PAPER FORM, or by PHONE. Contact us for more information - support@fragilex.org.au or 1300 394 636

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