Overview
Fragile X Association of Australia was formed as a national organisation in 1989 with the aims of providing support and service to the Fragile X community, providing information and education about Fragile X and providing a national voice on issues related to Fragile X.
Our vision is that people living with Fragile X are connected, included, understood & empowered to live their best possible lives.
Fragile X Association of Australia is an incorporated association (incorporated in NSW). Registered address: Suite 204 20 Dale Street, Brookvale NSW 2100.
Our Mission
Supporting people living with Fragile X to live their best possible lives through connection, education and advocacy.
Underlying Principles
Service, Respect, Accountability, Evaluation, Compliance.
Governance
We are a member-based organisation, governed by our Constitution, applicable laws, statutes and regulations.
Fragile X Association of Australia comprises members and an elected Board of volunteer directors. The organisation has an Executive Committee and employs staff.
Several sub-committees serve to support the organisation through information and recommendations, including the Fragile X Scientific, Clinical and Research Sub-committee , and the Fragile X Endowment Fund Committee
Membership
As specified in our Constitution, membership is open to:
- People who are personally affected by Fragile X
- Parents, guardians, carers or relatives of someone affected by Fragile X
- Health professionals whose practice involves Fragile X
- Scientists, geneticists or researchers whose work is involved with Fragile X
- Educational professionals involved with students with Fragile X
- People with a commitment to advancing the objects of the Association (as specified in the Constitution),
- Organisations providing support/service related to Fragile X.
There is no fee for membership of Fragile X Association of Australia. To join click here.
Funding
Fragile X Association of Australia is funded by donations, grants and fundraising, and we are very grateful to the members, communities and organisations who support us.
We are especially grateful to the Margaret and John Cunninghm and their family for their close involvement in our organisation since its establishment over 30 years ago and for their generosity as our principal donor.
Donations
Donations may be made online and offline. All donations of $2.00 and over are tax deductible. Click here to make a donation.
Financials
The organisation has a financial year 1 July to 30 June, and holds an Annual General Meeting once a year for presenting financial statements, the election of Board members and other business.
Our Annual Reports provide an excellent overview of our work and activities throughout the year, and include our audited financial statements.
We are very grateful to Manser Tierney & Johnston, Chartered Accountants in Wahroonga, NSW, for supporting us through their pro bono audit services for over 20 years.