The majority of our podcasts are audio recordings from our FX webinar series. Some are from workshops we have held, or small videos we’ve made featuring a specialist in Fragile X syndrome or a condition related to the Fragile X premutation.
The full range of our podcasts is available on Apple Podcast and Spotify. The video recordings which provide the source of the podcasts can be found on our youtube channel FX webinar recording playlist.
With Bev Kadish, occupational therapist and founder of Write Start OT, from a webinar recording on 28 July 2026. Bev explains what sensory processing is, the eight senses behind it, and how to build and run a sensory diet at home.
Fragile X Podcasts
Four researchers share what is happening right now in Fragile X research: a new international registry for premutation carriers, what is being learned about the premutation in women, a project changing how families receive a genetic diagnosis, and an update on the clinical trials in the pipeline.
Fragile X Podcasts
With Dr Jonathan Cohen, specialist physician and Medical Director of Fragile X Alliance, from a webinar recording on 14 May 2026.
Fragile X Podcasts
Concise (7-minute) version of our classic "explainer" about Fragile X syndrome, featuring Australian and international experts in field. Ideal introduction to Fragile X for parents, carers and everyone supporting a child with Fragile X syndrome.
Fragile X Podcasts
This resource remains our classic "explainer" about Fragile X syndrome, featuring Australian and international experts in field. Ideal introduction to Fragile X for parents, carers and everyone supporting a child with Fragile X syndrome.
Fragile X Podcasts
With Dr Jennifer Epstein PsyD., from webinar recording December 2023. Communication, sensory, motor, physiology & cognitive delays are commonly associated with Fragile X syndrome. These delays can pose challenges for building toileting skills in childhood and retaining those skills throughout life. This session focuses on successful toileting skills development for children over the age of 10 and adults.
Fragile X Podcasts
With Dr Jennifer Epstein PsyD., from webinar recording November 2023. Communication, sensory, motor, physiology & cognitive delays are commonly associated with Fragile X syndrome. These delays can pose challenges for building toileting skills in childhood and retaining those skills throughout life. This session focuses on successful toileting skills development for children to the age of 10.
Fragile X Podcasts
With Dr Marcia Braden PhD, psychologist, from a webinar recording from November 2023. Discussion of the significant impact Fragile X-associated anxiety has on daily living and on behaviours for children & adults with Fragile X syndrome. Practical tips and strategies for helping an individual to manage that anxiety and achieve successful outcomes.
Fragile X Podcasts
With Dr Jonathan Cohen MD, from a webinar recording August 2023. Discussion of conditions associated with Fragile X syndrome (such as anxiety, ADHD, aggression and self-injury, OCD, mood disorders, epilepsy and sleep disorders) and the types of medications which may be recommended for the treatment of those conditions.
Fragile X Podcasts
With Dr Mary-Ann O'Donovan, from the FX Research Roundup webinar 13 July 2023. Profiling the first Australian study of adults and ageing in Fragile X syndrome, a collaboration between Fragile X Association of Australia and Centre for Disability Studies in 2024-2026.
Fragile X Podcasts
Dr Helen (Honey) Heussler, developmental and behavioural paediatrician. Outline of the working of the human endocannabinoid system, the impact of Fragile X syndrome on that system, and how cannabidiol (non-THC CBD) can provide regulation and control. Discussion of the function and findings of clinical trial phases which preceded the current RECONNECT study in Australia.
Fragile X Podcasts
Dr Helen (Honey) Heussler, developmental and behavioural paediatrician and sleep specialist, from webinar recording May 2023. Unpacking what lies behind the problems many children with Fragile X have in initiating and maintaining sleep. Practical strategies for environmental and behavioural modifications to help children achieve good sleep.
Fragile X Podcasts
Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.
