Understanding Anxiety & Behaviours in Fragile X syndrome

November 11th, 2023

Dr Marcia Braden PhD, psychologist, from webinar recording 11 November 2023.

Fragile X-associated anxiety has a significant impact on daily living and on behaviours for children & adults with Fragile X syndrome. Dr Braden discusses how the Fragile X-associated anxiety is different to that experienced by neurotypical individuals. Dr Braden presents practical tips and strategies for helping an individual to manage the anxiety and achieve the best outcomes.

The information presented here will be extremely helpful for parents, carers, family members, educators, therapists, disability support workers, employers and everyone who is supporting a child or an adult with Fragile X syndrome.

The webinar was an update of Dr Braden’s earlier webinar on Anxiety and was co-hosted by Fragile X Association of Australia and Fragile X New Zealand.

Dr Marcia Braden PhD, is a psychologist, educator and specialist in Fragile X syndrome.

Watch the video recording of the webinar on our youtube channel: https://youtu.be/Z0PbxSG-tp4 


Survey for parents / carers of adults with Fragile X syndrome

FRAGILE X | ADULTS & AGEING. We're undertaking the first Australian study on the support needs, health & wellbeing of ADULTS with Fragile X syndrome. Our goal is to enhance quality of life for adults with Fragile X syndrome as they age. We invite parents or carers to participate in our SURVEY. The survey has questions about: 1. GENERAL HEALTH AND WELLBEING of the adult with Fragile X syndrome. 2. EFFECTIVENESS OF EXISTING SUPPORTS for the adult with Fragile X syndrome as they age. 3. FUTURE PLANNING concerns of families & carers who provide support 4. ANY GAPS IN SUPPORTS OR SERVICES which may impede best outcomes in care. From the information contributed through the Survey we will develop training modules for frontline carers and tools for advocacy. The Survey can be completed ONLINE, in PAPER FORM, or by PHONE. Contact us for more information - support@fragilex.org.au or 1300 394 636

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