Fragile X Association of Australia

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.

Fragile X Disorders

Fragile X-associated Disorders are a family of inherited conditions caused by alterations (expansions) in the FMR1 gene on the X chromosome.

Who Are We?

Fragile X Association of Australia is a member-based organisation and registered charity providing support to people living with Fragile X and their families and carers.

FX Webinars & Videos - as podcasts

A selection of recordings from our FX webinar series, FX workshops and some videos are now accessible as podcasts. Featuring Dr Marcia Braden PhD and others who specialise in supporting children and adults who are living with Fragile X syndrome. Find us on Spotify and Apple Podcasts!

Looking for recordings of our webinar series?

Our FX webinar series features expert speakers on a while range of topics related to Fragile X. Most are recorded, and you can find the recordings on our youtube channel. The series kicked off for 2023, with psychologist and special educator Dr Marcia Braden PhD on strategies for lifetime learning.

Exploring the experiences of online peer support programs in the Fragile X community

Melbourne Disability Institute funded a qualitative study of the experience of engagement with our educational webinar program, the Zoom peer support groups and our Facebook discussion page. The results reinforce the value of the programs and highlight some future enhancements. Read the report online.

Recordings are online - Supporting the unique FX learning style, across a lifetime

A pleasure to host Dr Marcia Braden live for a 2-part review on the uniqueness of the Fragile X learning style - and the SUPPORTS and STRATEGIES that will help the learning progress of a child or an adult right throughout their lifetime, from school settings through to employment pathways. The recordings of PART 1 and PART 2 are available on our youtube channel, along with a series of other videos with Dr Marcia Braden about Fragile X syndrome.

Fundraiser for Fragile X! Donations were matched by Shaw and Partners Foundation

CLICK HERE to see some incredible ACTION video footage from the day! We're proud to be charity partner for the annual Manly Wharf Bridge to Beach paddle race. And what a fabulous race it was this year. 400 or so paddlers made their way from Blues Point Reserve across to the Manly Cove finish line. An amazing $22,600 was raised to help fund our Family Support and Counselling role and FX HelpLine, including the matched $10,000 pledged by the Shaw and Partners Foundation.

World Fragile X Day!

World Fragile X Day: 22 July: Celebrating individuals and families who are living with Fragile X and acknowledging the work being done to ensure early diagnosis and future treatments.

Home

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Disorders

Who Are We?

FX Webinars & Videos - as podcasts

Looking for recordings of our webinar series?

Exploring the experiences of online peer support programs in the Fragile X community

Recordings are online - Supporting the unique FX learning style, across a lifetime

Fundraiser for Fragile X! Donations were matched by Shaw and Partners Foundation

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World Fragile X Day!

Home

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Disorders

Who Are We?

FX Webinars & Videos - as podcasts

Looking for recordings of our webinar series?

Exploring the experiences of online peer support programs in the Fragile X community

Recordings are online - Supporting the unique FX learning style, across a lifetime

Fundraiser for Fragile X! Donations were matched by Shaw and Partners Foundation

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World Fragile X Day!