Fragile X Association of Australia

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.

Fragile X Associated Conditions

Fragile X-associated Conditions are inherited conditions caused by alterations (expansions) in the FMR1 gene on the X chromosome.

Who Are We?

Fragile X Association of Australia is a member-based organisation and registered charity providing support to people living with Fragile X and their families and carers.

3-condition carrier testing covered by Medicare

From 1 November 2023, reproductive genetic carrier testing for Fragile X syndrome, Cystic Fibrosis and Spinal Muscular Atrophy will be covered by Medicare, for eligible couples. This subsidy will provide equitable access to testing for all couples who wish to understand their chance of having a child with one of these 3 conditions.

Be in it to win it! Play equipment & sensory accessories

Buy a FX Raffle Ticket, and help us support the FX community! Funds raised will allow us to deliver key services: * FX Counselling Support * HelpLine * Educational Webinars * Peer connections & referral program * Advocacy work * Raising awareness. Tickets on sale to December 8th. Raffle draw December 9th 11am in our office.

Looking for recordings of our webinar series?

YOUTUBE, Apple Podcast and Spotify! Our FX webinar series features expert speakers on a wide range of topics related to Fragile X. Most are recorded, and you can find the recordings as videos AND podcasts.

Our Annual Report 2023

Check out our report on our support programs and other activities for the Fragile X community in 2023. Advocacy. Education. FX webinar program. World Fragile X Day. Increasing understanding of Fragile x syndrome and Fragile X Premutation Associated Conditions. Fundraising events. And more!

Fabulous prizes!

Buy a FX Raffle Ticket and help us support the FX community! Tickets on sale to December 8th. Raffle draw December 9th 11am in our office. Funds raised will allow us to deliver our key services: * FX Counselling Support * HelpLine * Educational Webinars * Peer connections & referral program * Advocacy work * Raising awareness.

From 1 November 2023 - new Medicare Item Numbers

1 in 20 people carry a gene change for Cystic Fibrosis, Fragile X syndrome, or Spinal Muscular Atrophy, and most are unaware that they are carriers. Being a carrier may not impact that person’s own health, but there is a chance that their future children may have the condition. Carrier screening is a genetic test that can tell people if they have an increased chance of having children with an inherited genetic condition. From 1st November 2023, a new Medicare item number will cover reproductive genetic carrier testing for Cystic Fibrosis, Fragile X and Spinal Muscular Atrophy for people planning a pregnancy or in early pregnancy.

World Fragile X Day!

22 July | Celebrating everyone living with Fragile X and acknowledging the work being done to ensure early diagnosis and access to future treatments. Your support will help enable us to provide support to the Fragile X community around Australia through our HelpLine, specialist counselling, peer connections, educational webinars, referrals and advocacy. We are grateful for your lead.

Make a donation to Fragile X Association

Home

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Associated Conditions

Who Are We?

3-condition carrier testing covered by Medicare

Be in it to win it! Play equipment & sensory accessories

Looking for recordings of our webinar series?

Our Annual Report 2023

Fabulous prizes!

From 1 November 2023 - new Medicare Item Numbers

You can help us make a difference

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World Fragile X Day!

Home

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Associated Conditions

Who Are We?

3-condition carrier testing covered by Medicare

Be in it to win it! Play equipment & sensory accessories

Looking for recordings of our webinar series?

Our Annual Report 2023

Fabulous prizes!

From 1 November 2023 - new Medicare Item Numbers

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World Fragile X Day!