Fragile X Association of Australia

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.

Fragile X Disorders

Fragile X-associated Disorders are a family of inherited conditions caused by alterations (expansions) in the FMR1 gene on the X chromosome.

Who Are We?

Fragile X Association of Australia is a member-based organisation and registered charity providing support to people living with Fragile X and their families.

Bridge to Beach paddle race across Sydney Harbour

$25,000 raised for FX family support outreach and HelpLine!

The annual Manly Wharf Bridge to Beach sponsored by Investec is one of Australia’s largest open water paddling events and is regarded as one of the most spectacular in the world. Around 250 paddlers took on the race on Sunday 21st March, braving the wet and gloomy conditions, for the 20th Bridge to Beach. This year $25,500 was raised to help fund the specialist Fragile X counselling outreach and HelpLine, an outstanding result. Many thanks to Oceanpaddler, which organises the event, and to Shaw and Partners for matching $ for $ donations to $10,000. And of course a shoutout to the paddlers who made donations as they registered for the race!

COVID-19 vaccination for people with disability

Info, fact sheets & videos from Australian Health Department

The Australian Health Department has released details of the COVID-19 vaccination program for people with disability and their carers. The Department's website has Easy Read Fact Sheets about the COVID-19 vaccination, and answers to common questions about when and where to get the vaccine, the choice to receive the vaccine, vaccination of support workers, and more.

Back to School

The Fragile X Learning Style: Resources for Teachers and Parents

Learning can be a real challenge for children and adults who have Fragile X syndrome. We've gathered together some great resources for teachers, and parents, that focus on the challenges and strengths of the Fragile X learning style, and some great strategies for both the classroom and at home. These include: a guide on the Top 10 things to Know about the Fragile X Learning Style; a podcast on making adjustments to a classroom for a student with Fragile X, videod presentations by Fragile X expert Dr Marcia Braden on learning, behaviours and daily living skills.

Helpline 1300 394 636

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Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions.

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30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Disorders

Who Are We?

Bridge to Beach paddle race across Sydney Harbour

$25,000 raised for FX family support outreach and HelpLine!

COVID-19 vaccination for people with disability

Info, fact sheets & videos from Australian Health Department

Back to School

The Fragile X Learning Style: Resources for Teachers and Parents

You can help us make a difference

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Home

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Disorders

Who Are We?

Bridge to Beach paddle race across Sydney Harbour

$25,000 raised for FX family support outreach and HelpLine!

COVID-19 vaccination for people with disability

Info, fact sheets & videos from Australian Health Department

Back to School

The Fragile X Learning Style: Resources for Teachers and Parents

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