Fragile X Association of Australia

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.

Fragile X Disorders

Fragile X-associated Disorders are a family of inherited conditions caused by alterations (expansions) in the FMR1 gene on the X chromosome.

Who Are We?

Fragile X Association of Australia is a member-based organisation and registered charity providing support to people living with Fragile X and their families.

Ben's Shave to Raise

Get behind Ben as he raises funds for his favourite charity!

Ben Gower lives with Fragile X syndrome and is a wonderful ambassador for Fragile X! Ben understands the importance of raising awareness of Fragile X syndrome - and knows the difference that community awareness of Fragile X has made for him. This year Ben's annual fundraising for Fragile X awareness has taken a creative turn.... and he is bravely prepared to face the Tasmanian winter with no hair! BEN'S HEAD SHAVE FOR FRAGILE X will be streamed LIVE on Facebook from Mr Clyde's Barber Shop in Launceston on Monday 31st May at 11:30 am.

Disability Expo in Newcastle, NSW

We'll be there!

This Expo is a great opportunity for for people with a disability and their carers to find out about the latest products, services, technology, aids and equipment It aims to bring together everyone in the Hunter Disability sector, with the aim to enhance the lives of people with a disability. We'll have a Fragile X table at the Expo - if you're there on 21 and 22 May, drop by and say hello to our Family Support Counsellor, Liz.

Building knowledge

Join the Registry: Enrol online

The online International Fragile X Premutation (IFXPM) Registry has been created to encourage research on the Fragile X premutation and ultimately lead to better care, and possible treatments, for females and males whose health is impacted by the premutation. The goal is to build knowledge about the Fragile X premutation. If you're a Fragile X premutation carrier, we invite you to join the IFXPM Registry. (A Registry is a contact list stored in a secure online database.) Once you have enrolled, you may be contacted by the Registry team about research studies you may be eligible to participate in. You'll also be provided with annual updates about research developments in this field. The Registry is led by the US National Fragile X Foundation, the UC Davis MIND Institute, and is supported by Fragile X Association of Australia.

The Fragile X Learning Style

Resources for Teachers and Parents

Learning can be a real challenge for children and adults who have Fragile X syndrome. We've gathered together some great resources for teachers, and parents, that focus on the challenges and strengths of the Fragile X learning style, and some great strategies for both the classroom and at home. These include: a guide on the Top 10 things to Know about the Fragile X Learning Style; a podcast on making adjustments to a classroom for a student with Fragile X, videod presentations by Fragile X expert Dr Marcia Braden on learning, behaviours and daily living skills.

Helpline 1300 394 636

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You can help us make a difference

Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions.

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30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Disorders