Fragile X Association of Australia

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.

Fragile X Disorders

Fragile X-associated Disorders are a family of inherited conditions caused by alterations (expansions) in the FMR1 gene on the X chromosome.

Who Are We?

Fragile X Association of Australia is a member-based organisation and registered charity providing support to people living with Fragile X and their families.

Bridge to Beach - spectacular paddle across Sydney Harbour supporting Fragile X

Each year around 400 paddlers gather under the Harbour Bridge at first light and paddle 11k across to Manly Cove. We'e proud to be the charity partner for the Bridge to Beach! In 2020, for the 4th year running, Shaw and Partners Financial Services has generously committed to match, dollar for dollar, donations made to this Manly Wharf Bridge to Beach brought to you by Investec event. If the paddling community and other donations can raise over $5,000, Shaw and Partners will match this another $5,000 to help us reach our fundraising target of $10,000 to help resource our specialist Fragile X family support service and Help Line.

Supporting Adults and Children who have Fragile X syndrome

These seminars are designed for family members, educators, health professionals and disability service providers - everyone who has an interest in Fragile X syndrome. Dr Marcia Braden is an internationally renowned educational psychologist from the US who has worked with children and adults who have Fragile X syndrome, developmental delay or autism. These seminars will provide key insights and practical strategies on: Daily living skills; understanding anxiety in Fragile X; the Fragile X learning style. Dr Jonathan Cohen, medical director or Fragile X Alliance, will give an update on medications and health perspectives at several of these sessions. BOOK ONLINE at trybooking.com Registration closing soon. Last tickets for Melbourne seminars: 26th February. Last tickets for Sydney seminars: Monday 2 March. QUERIES: call us on 1300 394 636 or email support@fragilex.org.au