Fragile X Association of Australia

30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.

Fragile X Disorders

Fragile X-associated Disorders are a family of inherited conditions caused by alterations (expansions) in the FMR1 gene on the X chromosome.

Who Are We?

Fragile X Association of Australia is a member-based organisation and registered charity providing support to people living with Fragile X and their families.

Announcing World Fragile X Day, July 22

Connecting our world

We're proud to be a foundation partner in the World Fragile X Day initiative! Many thanks to FRAXA Research Foundation in the US for working to coordinate the global Fragile X community's celebration and awareness initiatives. We plan to light up the world for Fragile X on #WorldFragileXDay, with each country illuminating landmarks in their own signature colour. Fragile X Association of Australia is thrilled to take our annual #lightupforfx campaign to the world stage! In 2021 more than 60 landmarks across Australia will light up orange in support of the Fragile X community. Including landmark which have supported Fragile X Awareness Day in Australia since our first Light up in 2015 - Victoria Bridge and Story Bridge in Brisbane, and Launceston Town Hall. And we have new landmarks joining for the first time.

Ben's Shave to Raise was a smash hit

Ben got the word out about Fragile X - and raised $5,700!

Ben Gower lives with Fragile X syndrome and is a wonderful ambassador for Fragile X! Ben understands the importance of raising awareness of Fragile X syndrome - and knows the difference that community awareness of Fragile X has made for him. This year Ben's annual fundraising for Fragile X awareness took a creative turn.... and he bravely committed to face the Tasmanian winter with no hair! BEN'S HEAD SHAVE FOR FRAGILE X was streamed LIVE on Facebook from Mr Clyde's Barber Shop in Launceston on Monday 31st May at 11:30 am. Footage on our facebook page: https://www.facebook.com/fxAus Many thanks to Ben, his family, the Launceston community for their generous support to this campaign. And a shoutout to Terry and Jacinta and the team from My Clyde's Barber Shop in Launceston who hosted the event.

Disability Expo in Penrith, NSW

We'll be there!

This Expo is a great opportunity for for people with a disability and their carers to find out about the latest products, services, technology, aids and equipment It aims to bring together everyone in the Nepean area living with disability or working in the disability sector with the aim of enhancing the lives of people with a disability. We'll have a Fragile X table at the Expo - if you're there on 18-18 September, drop by and say hello to our Family Support Counsellor, Liz.

Building knowledge

Join the Registry: Enrol online

The online International Fragile X Premutation (IFXPM) Registry has been created to encourage research on the Fragile X premutation and ultimately lead to better care, and possible treatments, for females and males whose health is impacted by the premutation. The goal is to build knowledge about the Fragile X premutation. If you're a Fragile X premutation carrier, we invite you to join the IFXPM Registry. (A Registry is a contact list stored in a secure online database.) Once you have enrolled, you may be contacted by the Registry team about research studies you may be eligible to participate in. You'll also be provided with annual updates about research developments in this field. The Registry is led by the US National Fragile X Foundation, the UC Davis MIND Institute, and is supported by Fragile X Association of Australia.

The Fragile X Learning Style

Resources for Teachers and Parents

Learning can be a real challenge for children and adults who have Fragile X syndrome. We've gathered together some great resources for teachers, and parents, that focus on the challenges and strengths of the Fragile X learning style, and some great strategies for both the classroom and at home. These include: a guide on the Top 10 things to Know about the Fragile X Learning Style; a podcast on making adjustments to a classroom for a student with Fragile X, videod presentations by Fragile X expert Dr Marcia Braden on learning, behaviours and daily living skills.

Helpline 1300 394 636

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You can help us make a difference

Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions.

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30 Years Strong | Supporting | Sharing | Connecting | Informing

Understanding Fragile X

Fragile X Disorders