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Looking for recordings of our webinar series?

Looking for recordings of our webinar series?

Our FX webinar series features expert speakers on a while range of topics related to Fragile X. Most are recorded, and you can find the recordings on our youtube channel. The series kicked off for 2023, with psychologist and special educator Dr Marcia Braden PhD on strategies for lifetime learning.

Webinar recording will be online soon

Webinar recording will be online soon

Sleep disorders are common in Fragile X syndrome. Many have difficulty initiating and maintaining sleep. Dr Helen (Honey) Heussler covered the causes of sleep disturbance for children who have Fragile X, and strategies to help manage and moderate sleep behaviours and habits. Dr Jas Chawla spoke about a sleep study (survey) open to parents of children who have a neurodisability. The goal of the study is to develop national guidelines for the diagnosis and management of sleep problems in children with neurodisability. MORE INFO about the Sleep Study is in the NEWS section of this site.

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World Fragile X Day!

World Fragile X Day: 22 July: Celebrating individuals and families who are living with Fragile X and acknowledging the work being done to ensure early diagnosis and future treatments.

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