Each year our webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation.
The program is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome, planning for the future for a family member living with Fragile X syndrome, health aspects for people who are Fragile X premutation carriers and current research. The webinars are run live on Zoom.
The 2026 program commenced in May with Dr Jonathan Cohen presenting on Medications in Fragile X syndrome. Dr Cohen provided an overview of medications that can be helpful for symptoms of Fragile X syndrome. The recording is available on our youtube channel.
Webinars coming up in May and June 2026:
Series: Planning for the future for a family member with disability, presented by Margaret Duncan, Principal Lawyer of Duncan Legal. Please note – the webinars in this series will be Live Only (not recorded).
This webinar, held on 19th May, addressed disability-specific issues to consider when formulating Wills and Powers of Attorney that are to provide for a person with a disability. It covered types of protective trusts, who to appoint as trustees, asset protection strategies, preservation of pensions/government benefits, superannuation and life insurance beneficiary nominations, and some accommodation options.
In this presentation Margaret Duncan will address the advantages and limitations of Special Disability Trusts in providing for the future of a person with disability.
LIVE ONLY – join us on Zoom for the presentation and Q&A.
3. Guardianship & Administration (relevant to Victoria only). Tuesday 23 June, 7-8pm AEST Register here
This presentation will focus on Victorian Guardianship and Administration processes, not those relevant to other states and territories. Covering: Decision Making – Fundamental Human Right; Substituted v. Supported Decision Making; Definitions of Guardianship & Administration; Capacity; About VCAT; Reasons to seek a Guardianship and/or Administration Order; Medical Decisions; VCAT Applications, Hearings, Deliberations, Orders & Powers; VCAT Roles, Duties, Breaches, Reporting & Duration; Resources
Webinars planned for later in 2026
* Health issues for adults with Fragile X syndrome
* Understanding the Fragile X premutation and health impacts
* Sleep disorders associated with Fragile X syndrome
