About Us

Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia.

We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated disorders and to their families, carers and health and disability service providers.

We provide:

  • Helpline 5 days per week
  • Support to individuals and families
  • Counselling
  • Webinars
  • Information about Fragile X syndrome and Fragile X-premutation Associated Conditions
  • Referrals to services

Our small team of staff is based in Sydney, and is supported by a Board of eight volunteer directors and other committed volunteers across the states and territories.

Fragile X Association of Australia Inc is an association incorporated in New South Wales. Incorporation number: Y0934233

Fragile X Association of Australia is a charity registered with the Australian Charities and Not-for-profits Commission, and has been conferred Deductible Gift Recipient status by the Australian Taxation Office.

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ABN: 18 655 264 477
ARBN: 626 478 966
Registered address: Suite 204, 20 Dale Street, Brookvale NSW 2100
Phone: 02 9907 2366
Email: support@fragilex.org.au


End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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