About Us

Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia.

We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated disorders and to their families, carers and health and disability service providers.

We provide:

  • Helpline 5 days per week
  • Support to individuals and families
  • Counselling
  • Seminars and workshops
  • Information and referrals

Our small team of staff is based in Sydney, and is supported by a Board of eight volunteer directors and other committed volunteers across the states.

Fragile X Association of Australia Inc is an association incorporated in New South Wales. Incorporation number: Y0934233

Fragile X Association of Australia is a charity registered with the Australian Charities and Not-for-profits Commission, and has been conferred Deductible Gift Recipient status by the Australian Taxation Office.

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ABN: 18 655 264 477
ARBN: 626 478 966
Registered address: Suite 204, 20 Dale Street, Brookvale NSW 2100
Phone: 02 9907 2366
Email: support@fragilex.org.au


World Fragile X Day!

22 July | Celebrating everyone living with Fragile X and acknowledging the work being done to ensure early diagnosis and access to future treatments. Your support will help enable us to provide support to the Fragile X community around Australia through our HelpLine, specialist counselling, peer connections, educational webinars, referrals and advocacy. We are grateful for your lead.

Make a donation to Fragile X Association
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