About Us
Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia.
We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated conditions and to their families, carers and health and disability service providers. We work to raise awareness of Fragile X and provide information on Fragile X.
We offer:
- Helpline 5 days per week
- Support to individuals and families
- Counselling
- Webinars
- Information about Fragile X syndrome and Fragile X-premutation Associated Conditions
- Referrals to services
Our small team of staff is based in Sydney, and is supported by a Board of volunteer directors and other committed volunteers across the states and territories.
Fragile X Association of Australia Inc is an association incorporated in New South Wales (1989). Incorporation number: Y0934233
Fragile X Association of Australia is a charity registered with the Australian Charities and Not-for-profits Commission, and has been conferred Deductible Gift Recipient status by the Australian Taxation Office.

ABN: 18 655 264 477
ARBN: 626 478 966
REGISTERED ADDRESS:
To 29 November 2026: Suite 204, 18-22 Dale Street, Brookvale NSW 2100
From 30 November 2026: Suite 206, 18-22 Dale Street, Brookvale NSW 2100
STREET ADDRESS: 20 Dale Street, Brookvale NSW 2100
POSTAL ADDRESS: PO Box 7009, Warringah Mall NSW 2100
PHONE: 02 9907 2366
HELPLINE: 1300 394 636
EMAIL: support@fragilex.org.au
