FX Webinar Series 2025
Our 2025 webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation.
The program for the first half of 2025 is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome and planning for the future, and health aspects for women who are Fragile X premutation carriers.
We’re delighted to welcome key speakers back to the program, including GP Dr Jonathan Cohen, occupational therapist Bev Kadish, endocrinologist Dr Amanda Vincent, IVF specialist Dr Mark Livingstone, disability-specialist lawyer Margaret Duncan and, later in the year, psychologist Dr Marcia Braden.
The webinars and Q&A sessions run live on Zoom. Registration links for each of the upcoming webinars are listed below.
For many webinars the recording of the presentation can be found on the Fragile X Association of Australia youtube, Spotify and Apple Podcast platforms. If a webinar is “live only”, this will be clearly noted.
Many thanks to the Qantas Side by Side grant program and to Genea for supporting the production of several of our webinars in 2025.
Additional webinars will be added to the program as the year progresses.
Medications and Fragile X syndrome
Dr Jonathan Cohen, MD
Medical Director, Fragile X Alliance Clinic
This webinar on 20th February 2025 presented a discussion of medications which may considered in addressing symptoms of Fragile X syndrome such as anxiety, ADHD, ASD, mood disorders, epilepsy, and sleep disorders.
Dr Jonathan Cohen MD is the Medical Director of the Fragile X Alliance Clinic. In his clinical practice Dr Cohen sees children and adults living with Fragile X syndrome or the FMR1 (Fragile X) premutation.
Catchup on the recording of Dr Cohen’s presentation on youtube Spotify or Apple Podcasts
Sensory processing disorders and Fragile X syndrome
Bev Kadish
Write Start Occupational Therapy
Tuesday 20 May 2025, 7 – 8 pm AEDT
Bev Kadish is an Occupational Therapist with many years of experience in supporting children and adults with Fragile X syndrome, both through her own private practice and with the Fragile X Alliance Clinic.
Heightened and dysregulated sensory sensitivity is a very common for children and adults who have Fragile X syndrome, and can impact behaviours and daily living. In this webinar Bev will discuss how the sensory processing disorders can affect individuals and present sensory diets as a strategy to help give the person who has Fragile X syndrome the best chance to feel calm, alert and organised as a result of appropriate sensory input.
Fragile X-associated Primary Ovarian Insufficiency | FXPOI: What Do I Need to Know?
Dr Amanda Vincent MD
Monash Health
Monday 17th March 2025, 8 – 9 pm AEDT – RECORDING ONLINE SOON
Clinical Associate Professor Amanda Vincent is a leading Australian endocrinologist and menopause specialist, combining clinical practice in menopause with menopause related research, translation and education. Dr Vincent is lead endocrinologist in the Menopause and Menopause Oncology clinics, Monash Health, Clayton and Head of Early Menopause Research, Monash Centre for Health Research and Implementation, Monash University.
The webinar will focus on Fragile X-associated Primary Ovarian Insufficiency (FXPOI) and early menopause, covering health considerations and symptom management for women who are Fragile X premutation carriers. Dr Vincent will also discuss the risk factors for FXPOI, and will touched on fertility management considerations for young women who may be at risk of fertility issues related to the Fragile X premutation.
IVF AND PRE-IMPLANTATION GENETIC DIAGNOSIS (PGD)
Dr Mark Livingstone
Genea
Tuesday 29th April, 7 – 8 pm AEST
Dr Mark Livingstone is the Medical Director at the Genea clinic, in the Sydney CBD.
Dr Livingstone specialises in genetic conditions requiring preimplantation genetic diagnosis (PGD) and couples requiring a second opinion who have had previous unsuccessful IVF cycles.
Future Planning
Margaret Duncan
Duncan Legal
DISABILITY ESTATE PLANNING (Live Only)
Thursday 15th May, 7 – 8 pm AEST
Disability specific issues to consider when formulating Wills and Powers of Attorney that are to provide for a person with a disability. Covering: types of protective trusts, who to appoint as trustees, asset protection strategies, preservation of pensions/government benefits, superannuation & life insurance beneficiary nominations, and some accommodation options.
REGISTER HERE
SPECIAL DISABILITY TRUSTS (Live Only)
Thursday 29th May, 7 – 8 pm AEST
Discussion of the advantages and limitations of Special Disability Trusts in providing for the future for a person with disability.
REGISTER HERE
