Become a Member


We’re a member-based organisation, and your membership matters to us!

Membership is free.

Individual and family membership is open to anyone in Australia impacted by Fragile X syndrome or Fragile X-associated conditions, their family members and their carers.

Once you or your family join as a member we’ll be keen to stay in touch with you to hear how you and your family are, and to share news about other members, news, updates on Fragile X research, and any upcoming events.

Professional membership is open to people who have a practising or research interest in Fragile X – including health professionals, researchers, disability support professionals, special educators, social workers, genetic counsellors, and allied health professionals. Organisational membership is open to organisations, such as disability support organisations or schools who are working with people affected by Fragile X.

You will hear from us regularly as we email or post you our regular newsletter.  We also contact our members by email if we have news of special events or announcements, including our Annual General Meeting. We will also contact you once a year, generally by email, to check that the contact details we have for you are correct.

To Join

Complete the membership application online or contact us by phone on 1300 394 636 or by email

If you have any questions about membership of Fragile X Association of Australia, please contact us.


Follow us on social

News, stories and more on our Facebook page, as well as Instagram and twitter sites.
We also host several private Facebook discussion groups.   Get in touch if you’d like detail of discussion groups.

To learn more about Fragile X Association of Australia:

Our Annual Reports provide a great overview of our work throughout the year, and news of our members.

Our Regular Newsletters provide news on events, member stories, the latest information on Fragile X, and more.

Our Privacy and confidentiality Policy

The Fragile X Association of Australia Constitution sets out the purpose of Fragile X Association of Australia, and the rules by which the organisation is governed.

Note: Fragile X Association of Australia is an association incorporated in New South Wales (1989).  ABN 18 655 264 477 ARBN 626 478 966 Incorporation number Y0934223.
It is also a charity registered with the Australian Charities and Notforprofits Commission.


End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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