Manly Wharf Bridge to Beach race supporting Fragile X – all the action!

February 29th, 2024

The annual Manly Wharf Bridge to Beach is a spectacular 11km paddle race across Sydney Harbour.
This iconic race is one of the biggest on Australia’s paddling calendar, and delivers thrills and spills while supporting Fragile X Association of Australia  in raising much-needed funds. We are proud to be charity partner for the Bridge to Beach!

On Sunday 18th February  2024,  close to 400 paddlers took on the 23rd annual Bridge to Beach challenge and got behind our fundraising.    An incredible $29,000 was raised for the Fragile X Family Support role, thanks to the generosity of the paddlers, and of Shaw and Partners Financial Services in matching funds raised!

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Survey for parents / carers of adults with Fragile X syndrome

FRAGILE X | ADULTS & AGEING. We're undertaking the first Australian study on the support needs, health & wellbeing of ADULTS with Fragile X syndrome. Our goal is to enhance quality of life for adults with Fragile X syndrome as they age. We invite parents or carers to participate in our SURVEY. The survey has questions about: 1. GENERAL HEALTH AND WELLBEING of the adult with Fragile X syndrome. 2. EFFECTIVENESS OF EXISTING SUPPORTS for the adult with Fragile X syndrome as they age. 3. FUTURE PLANNING concerns of families & carers who provide support 4. ANY GAPS IN SUPPORTS OR SERVICES which may impede best outcomes in care. From the information contributed through the Survey we will develop training modules for frontline carers and tools for advocacy. The Survey can be completed ONLINE, in PAPER FORM, or by PHONE. Contact us for more information - support@fragilex.org.au or 1300 394 636

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