This resource remains our classic "explainer" about Fragile X syndrome, featuring Australian and international experts in field. Ideal introduction to Fragile X for parents, carers and everyone supporting a child with Fragile X syndrome.
Fragile X Podcasts
Beyond the sheer exhilaration of paddling across Sydney's beautiful Harbour, the Bridge to Beach paddle race is dedicated to supporting and raising funds for Fragile X Association of Australia, adding a meaningful purpose to this thrilling paddling experience. This year race sponsor Shaw and Partners has pledged to MATCH, $ for $, the first $5,000 raised, This incredible support will help us reach our fundraising target of $10,000. You can help is us reach our fundraising goal and activate the matched donation by Shaw and Partners by making a donation online
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Our knowledge bank on Fragile X is extensive! Ideal for early learning about Fragile X, or a refresh. Catch up now, before our FX Webinar Series kicks off again for 2024. We've hosted and recorded many workshops and webinars over the years, featuring leading international and local specialists in Fragile X syndrome and the Fragile X premutation. The video recordings of webinars and workshops are available on our youtube channel, and some of the recordings are podcasts on our channels on Spotify and Apple Podcasts.
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The Manly Wharf Bridge to Beach stands as one of Australia’s premier open water paddling events, celebrated globally for its breathtaking spectacle. It's an 11 km paddle across Sydney Harbour, sponsored by Shaw and Partners Financial Services and organised every year by Dean Gardiner and the team from Oceanpaddler. Fragile X Association of Australia is thrilled to be charity partner for this event, raising funds for our important Family Support Counselling service.
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Wrapping up 2023 and a look at what's on our horizon for 2024! Our research study on Adults/Ageing and Fragile X syndrome. The Zynerba RECONNECT clinical trial extended to March 2024. Our webinar program for 2024. Disability Expos 2024. Congratulating the FXAA Achievement and Volunteer Award winners for 2023. And profiling online learning modules about intellectual disability & mental health; and sensory sensitivities in Fragile X syndrome.
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Winning ticket numbers in the FX Raffle which was drawn at the office of Fragile X Association of Australia, Suite 204 20 Dale Street BROOKVALE NSW 2100 on Saturday 9 December at 11am.
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With Dr Jennifer Epstein PsyD., from webinar recording December 2023. Communication, sensory, motor, physiology & cognitive delays are commonly associated with Fragile X syndrome. These delays can pose challenges for building toileting skills in childhood and retaining those skills throughout life. This session focuses on successful toileting skills development for children over the age of 10 and adults.
Fragile X Podcasts
This 2-part webinar with psychologist Dr Jennifer Epstein addresses challenges that many children and some adults with Fragile X syndrome can experience with toileting – as a developmental issue, an ongoing concern, or as a regression from time to time. On Saturday 2 December the focus is on older children and adults.
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Psychologist Dr Jennifer Epstein presented research findings and key background information on toileting skill development in children to the age of 10 who have Fragile X syndrome. Dr Epstein addressed practical strategies which parents and carers can use to monitor and to assist progress with toileting skills.
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Webinar recording from 11 November 2023 - Dr Marcia Braden PhD licensed psychologist speaking on Anxiety and Behaviours in Fragile X syndrome. Addressing what lies behind the anxiety experienced by many children with Fragile X syndrome, how the anxiety impacts daily living, learning and behaviours, and practical strategies that can be put in place to best support the person with Fragile X syndrome.
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Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.
