We’re looking forward to presenting 3 new webinars over the coming months!

• Microboards – an introduction to the role of Microboards as a means to support planning for the future for a child or adult with Fragile X syndrome
• “Open Mic” – Ask me anything about Fragile X syndrome – with our regular presenters Dr Marcia Braden PhD and Dr Jonathan Cohen MD.
• Update on the FMR1 premutation – looking at what is known about health aspects which some carriers for the Fragile X premutation may experience. Presented by Dr Jonathan Cohen MD.

With thanks to the Qantas Foundation Side by Side grant program for supporting several of our webinars in 2024 and early 2025, and to Zynerba Pharmaceuticals for an educational grant supporting several webinar presentations by Dr Marcia Braden PhD.

INTRODUCTION TO MICROBOARDS –  Tuesday 3 September 7:30PM AEST    LIVE ONLY
Presented by Jaquie Mills, Managing Director of Microboards Australia.

A Microboard is a group of people in unpaid relationships with a person with disability who meet regularly to support that person to make plans, make decisions, be socially included, be safe and well, and to have the life they want.

This network is formalised by becoming an incorporated association which can safeguard the person throughout their life.              Microboards can assist with employing support staff and are the original ‘service for one’ model.

This 1-hour webinar will cover:

• the history of Microboards
• the benefits of incorporation
• Microboard principles and values
• how people usually attract people to become members of a Microboard
• how Microboards Australia supports the establishment of Microboards
• the benefits to the focus person’s quality of life.

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ASK ME ANYTHING… ABOUT FRAGILE X SYNDROME   | Dr Marcia Braden PhD and Dr Jonathan Cohen MD
– Sunday 8 September  10:00am AEST/12PM NZST    LIVE ONLY

This is our first “Open Mic” webinar, and we’re delighted to have psychologist Dr Marcia Braden PhD and Dr Jonathan Cohen, medical director of the Fragile X Alliance Clinic join us for this Q&A event. Dr Braden and Dr Cohen are both very experienced clinicians, having supported many children and adults who have Fragile X syndrome. They are regular presenters for our webinar program and internationally.
This is a fantastic opportunity to ask any questions you may have about Fragile X syndrome –   whether that be about behaviours, anxiety,  learning challenges, making adjustments for daily living, health issues associated with Fragile X syndrome, or treatments.
How to ask your question?
IN ADVANCE – Submit questions in advance when you register to attend the webinar OR email wendy@fragilex.org.au
ON THE DAY – Ask questions in the Chat box OR verbally.
This webinar will be hosted by Andrea Lee, Executive Director of Fragile X Society of New Zealand.

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UPDATE ON THE FRAGILE X (FMR1) PREMUTATION…   With Dr Jonathan Cohen MD
– Tuesday 19 November, 7:30 – 9:00PM AEDT/9:30-11:00PM NZDT       LIVE & RECORDED

Discussion of the growing body of knowledge about the FMR1 premutation – understanding the range of health impacts some people who are carriers for Fragile X can experience, and approaches to treatment that may be helpful. Followed by Q&A.
This webinar will be 90 minutes in total, including a short break.
Dr Jonathan Cohen is the Medical Director of the Fragile X Alliance Clinic.
This webinar will be live, and the recording of the presentation will be available later on our youtube channel.

Click Here to REGISTER