FX Newsletter | June 2024

June 6th, 2024

Catch up on our latest news – our June newsletter is online – :

  • Our Fragile X Care | Adults and Ageing research study exploring support needs, health & wellbeing  and future planning for adults with Fragile X syndrome. The first phase of this work is the opportunity for families and support providers to participate in Surveys.
  • Webinars coming up  – Disability Estate Planning, Special Disability trusts, Microboards,  FX Research Roundup, and more
  • Family Stories – meet talented triathlete Montana Whiteley, and read about Chloe and Tom a new children’s story about siblings with Fragile X, and the wonderful Neilson World of Puzzles for children & adults of all abilities
  • Building knowledge about the Fragile X premutation – research opportunities, and profiling the book  “The Carriers – What the Fragile X Gene Reveals about Family, Heredity, and Scientific Discovery”

End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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