FX Newsletter | June 2024
Catch up on our latest news – our June newsletter is online – :
- Our Fragile X Care | Adults and Ageing research study – exploring support needs, health & wellbeing and future planning for adults with Fragile X syndrome. The first phase of this work is the opportunity for families and support providers to participate in Surveys.
- Webinars coming up – Disability Estate Planning, Special Disability trusts, Microboards, FX Research Roundup, and more
- Family Stories – meet talented triathlete Montana Whiteley, and read about Chloe and Tom a new children’s story about siblings with Fragile X, and the wonderful Neilson World of Puzzles for children & adults of all abilities
- Building knowledge about the Fragile X premutation – research opportunities, and profiling the book “The Carriers – What the Fragile X Gene Reveals about Family, Heredity, and Scientific Discovery”