End of Financial Year donations

May 27th, 2024

Message from Cynthia Roberts, President of Fragile X Association of Australia

A warm hello to our wonderful members and friends of FXAA,

As President of the Fragile X Association of Australia (FXAA), and mother of 29-year-old Daniel who lives with Fragile X syndrome, I want to share a quick update with you.

We’re just a few weeks out from the End of Financial Year and as June 30 approaches, I invite you to consider making a donation to FXAA.

As a registered charity, our work is funded entirely by donations, fundraising and grants – we receive no government funding. I appreciate that financial pressures are considerable for families at the current time however, if you’re able to provide support, your generosity will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver our:

  1. Counselling support service
  2. FXAA Helpline – available 5 days per week
  3. Educational webinar program – our next few webinars will focus on planning for the future for family members, and on Fragile X premutation health matters.
  4. Advocacy work – for example our Fragile X Care | Adults & Ageing study. This is the very first Australian study to bring focus to the health, support and wellbeing needs of adults with Fragile X syndrome as they age. We’re undertaking this work in collaboration  with the Centre for Disability Studies, a not-for-profit research affiliate of University of Sydney.
  5. Peer connection and referrals – as a parent and as member of FXAA for close to three decades myself, I know how valuable the support and connections FXAA offers can be.

How to donate

Donations can be made directly here on our website:  or by direct deposit – please contact us at support@fragilex.org.au Donations of $2.00 and over are tax deductible.

What’s coming up

  1. We’re seeking insights from family members and caregivers of adults with Fragile X syndrome to help us understand support and service gaps.  We invite you to take part in the Survey which is the foundation of our Adults & Ageing with Fragile X syndrome study. Click here for more information
  2. Our webinar program to the end of 2024 includes disability estate planning, microboards, circles of support, and health issues associated with the Fragile X premutation.
  3. Our online Fragile X knowledge base is being updated to include presentations by Dr Marcia Braden PhD on the Fragile X syndrome/ASD diagnosis  differentiation (webinar 25 May) and on females and Fragile X syndrome (webinar 13 April).  Youtube  and podcast (Spotify  and Apple)
  4. Over the coming months we’ll profile Fragile X at Disability Expos and educational  events for health professionals across major capital cities – an important way to increase understanding of Fragile X
  5. World Fragile X Day is 22 July 2024- stay tuned for more details

How you can make a difference in the lives of those affected by Fragile X

  1. Become a member – membership is free and open to anyone in Australia living with a Fragile X-associated condition, or with an interest in Fragile X
  2. Donate – now or at any point throughout the year. Your donation will help us to provide support to the Fragile X community, and to increase awareness of Fragile X-associated condition
  3. Volunteer – register your interest to volunteer; there are endless ways to get involved and show your support in a way that suits you
  4. Fundraise – find out how we can support and promote your fundraising efforts
  5. Bequest – a very special way of making a positive difference beyond your lifetime. Your bequest can support our current activities or you can choose for it to be invested in the Fragile X Endowment Fund for the long term support of FXAA.
  6. Connect – keep up to date via our newsletter and social media updates
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End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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