End of Financial Year donations
Message from Cynthia Roberts, President of Fragile X Association of Australia
A warm hello to our wonderful members and friends of FXAA,
As President of the Fragile X Association of Australia (FXAA), and mother of 29-year-old Daniel who lives with Fragile X syndrome, I want to share a quick update with you.
We’re just a few weeks out from the End of Financial Year and as June 30 approaches, I invite you to consider making a donation to FXAA.
As a registered charity, our work is funded entirely by donations, fundraising and grants – we receive no government funding. I appreciate that financial pressures are considerable for families at the current time however, if you’re able to provide support, your generosity will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver our:
- Counselling support service
- FXAA Helpline – available 5 days per week
- Educational webinar program – our next few webinars will focus on planning for the future for family members, and on Fragile X premutation health matters.
- Advocacy work – for example our Fragile X Care | Adults & Ageing study. This is the very first Australian study to bring focus to the health, support and wellbeing needs of adults with Fragile X syndrome as they age. We’re undertaking this work in collaboration with the Centre for Disability Studies, a not-for-profit research affiliate of University of Sydney.
- Peer connection and referrals – as a parent and as member of FXAA for close to three decades myself, I know how valuable the support and connections FXAA offers can be.
How to donate
Donations can be made directly here on our website: or by direct deposit – please contact us at support@fragilex.org.au Donations of $2.00 and over are tax deductible.
What’s coming up
- We’re seeking insights from family members and caregivers of adults with Fragile X syndrome to help us understand support and service gaps. We invite you to take part in the Survey which is the foundation of our Adults & Ageing with Fragile X syndrome study. Click here for more information
- Our webinar program to the end of 2024 includes disability estate planning, microboards, circles of support, and health issues associated with the Fragile X premutation.
- Our online Fragile X knowledge base is being updated to include presentations by Dr Marcia Braden PhD on the Fragile X syndrome/ASD diagnosis differentiation (webinar 25 May) and on females and Fragile X syndrome (webinar 13 April). Youtube and podcast (Spotify and Apple)
- Over the coming months we’ll profile Fragile X at Disability Expos and educational events for health professionals across major capital cities – an important way to increase understanding of Fragile X
- World Fragile X Day is 22 July 2024- stay tuned for more details
How you can make a difference in the lives of those affected by Fragile X
- Become a member – membership is free and open to anyone in Australia living with a Fragile X-associated condition, or with an interest in Fragile X
- Donate – now or at any point throughout the year. Your donation will help us to provide support to the Fragile X community, and to increase awareness of Fragile X-associated condition
- Volunteer – register your interest to volunteer; there are endless ways to get involved and show your support in a way that suits you
- Fundraise – find out how we can support and promote your fundraising efforts
- Bequest – a very special way of making a positive difference beyond your lifetime. Your bequest can support our current activities or you can choose for it to be invested in the Fragile X Endowment Fund for the long term support of FXAA.
- Connect – keep up to date via our newsletter and social media updates