Dr Helen (Honey) Heussler, developmental and behavioural paediatrician. Outline of the working of the human endocannabinoid system, the impact of Fragile X syndrome on that system, and how cannabidiol (non-THC CBD) can provide regulation and control. Discussion of the function and findings of clinical trial phases which preceded the current RECONNECT study in Australia.
Fragile X Podcasts
News
Dr Helen (Honey) Heussler, developmental and behavioural paediatrician and sleep specialist, from webinar recording May 2023. Unpacking what lies behind the problems many children with Fragile X have in initiating and maintaining sleep. Practical strategies for environmental and behavioural modifications to help children achieve good sleep.
Fragile X Podcasts
News
News
With Dr Marcia Braden PhD, psychologist. From a recording of part 2 of a 2-part webinar, March 2023. Here Dr Braden showcases strategies which utilise learning strengths and are applicable for a classroom, and in community and job settings, with examples of successful school supports and work placements that match learning style to tasks.
Fragile X Podcasts
With Dr Marcia Braden PhD, psychologist. From a recording of part 1 of a 2-part webinar, February 2023. Dr Braden discusses accommodations to work around the challenges and harness the strengths of a child or adult living with Fragile X syndrome, in a range of learning environments – in the home, school, workplace setting or in the community.Â
Fragile X Podcasts
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Annual Reports
With Dr Marcia Braden PhD, psychologist. From a recording second part of a 2-part webinar, November 2022. Extensive discussion on supportive strategies to moderate difficult and challenging behaviours of individuals (focussing on males) who have Fragile X syndrome.
Fragile X Podcasts
With Dr Mark Livingstone, IVF specialist, from a webinar recording in August 2022. Discussion of the Pre-Implantation Genetic Diagnosis (PGD) testing technique which can be used in an IVF process to differentiate embryos before transfer.
Fragile X Podcasts
With A/Prof Alison Archibald, from a webinar in August 2022. The essentials of the genetics of Fragile X, how the Fragile X gene alteration is passed on in families, and a clear overview of reproductive genetic carrier testing for Fragile X. Â Â
Fragile X Podcasts
Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.
