Research Study: Early Sleep Interventions to Improve Outcomes in Children with Neurodisability
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Sleep Disorders and Fragile X syndrome
Dr Helen (Honey) Heussler, developmental and behavioural paediatrician and sleep specialist, from webinar recording May 2023. Unpacking what lies behind the problems many children with Fragile X have in initiating and maintaining sleep. Practical strategies for environmental and behavioural modifications to help children achieve good sleep.
Fragile X Podcasts
Clinical trial in Fragile X syndrome – 4 Australian sites
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Report: Exploring experiences with online peer support programs for the Fragile X community
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Supporting Learning Across the Lifespan in Fragile X (part 2)
With Dr Marcia Braden PhD, psychologist. From a recording of part 2 of a 2-part webinar, March 2023. Here Dr Braden showcases strategies which utilise learning strengths and are applicable for a classroom, and in community and job settings, with examples of successful school supports and work placements that match learning style to tasks.
Fragile X Podcasts
Supporting Learning Across the Lifespan in Fragile X (Part 1)
With Dr Marcia Braden PhD, psychologist. From a recording of part 1 of a 2-part webinar, February 2023. Dr Braden discusses accommodations to work around the challenges and harness the strengths of a child or adult living with Fragile X syndrome, in a range of learning environments – in the home, school, workplace setting or in the community.
Fragile X Podcasts
Congratulations Mrs Margaret Cunningham AM Australia Day Honours list 2023
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FXAA Annual Report 2022
Annual Reports
Understanding Behaviours and Fragile X syndrome, Part 2 | Supportive Strategies
With Dr Marcia Braden PhD, psychologist. From a recording second part of a 2-part webinar, November 2022. Extensive discussion on supportive strategies to moderate difficult and challenging behaviours of individuals (focussing on males) who have Fragile X syndrome.
Fragile X Podcasts
Pre-Implantation Genetic Diagnosis (PGD) Testing for Carriers of Fragile X
With Dr Mark Livingstone, IVF specialist, from a webinar recording in August 2022. Discussion of the Pre-Implantation Genetic Diagnosis (PGD) testing technique which can be used in an IVF process to differentiate embryos before transfer.
Fragile X Podcasts
Genetics of Fragile X and Carrier Screening for Fragile X
With A/Prof Alison Archibald, from a webinar in August 2022. The essentials of the genetics of Fragile X, how the Fragile X gene alteration is passed on in families, and a clear overview of reproductive genetic carrier testing for Fragile X.
Fragile X Podcasts
Australia lit up for World Fragile X Day 2022!
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