Join us! As we celebrate Awards for achievements by members of the FX community, thank the volunteers who are behind our successes, review our programs over the past year, vote on nominations to the Board, and take a look at what's on the horizon for 2024. Online via Zoom.
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With Dr Jonathan Cohen MD, from a webinar recording August 2023. Discussion of conditions associated with Fragile X syndrome (such as anxiety, ADHD, aggression and self-injury, OCD, mood disorders, epilepsy and sleep disorders) and the types of medications which may be recommended for the treatment of those conditions.
Fragile X Podcasts
World Fragile X Day is 22 July, and celebrated in many countries around the world including Australia. Since 2016 Fragile X Association of Australia has invited significant landmarks across Australia to illuminate “ORANGE” on this day, orange being the signature colour for Fragile X in Australia. 2023 was set to be a standout!
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With Dr Mary-Ann O'Donovan, from the FX Research Roundup webinar 13 July 2023. Profiling the first Australian study of adults and ageing in Fragile X syndrome, a collaboration between Fragile X Association of Australia and Centre for Disability Studies in 2024-2026.
Fragile X Podcasts
Dr Helen (Honey) Heussler, developmental and behavioural paediatrician. Outline of the working of the human endocannabinoid system, the impact of Fragile X syndrome on that system, and how cannabidiol (non-THC CBD) can provide regulation and control. Discussion of the function and findings of clinical trial phases which preceded the current RECONNECT study in Australia.
Fragile X Podcasts
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Dr Helen (Honey) Heussler, developmental and behavioural paediatrician and sleep specialist, from webinar recording May 2023. Unpacking what lies behind the problems many children with Fragile X have in initiating and maintaining sleep. Practical strategies for environmental and behavioural modifications to help children achieve good sleep.
Fragile X Podcasts
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With Dr Marcia Braden PhD, psychologist. From a recording of part 2 of a 2-part webinar, March 2023. Here Dr Braden showcases strategies which utilise learning strengths and are applicable for a classroom, and in community and job settings, with examples of successful school supports and work placements that match learning style to tasks.
Fragile X Podcasts
With Dr Marcia Braden PhD, psychologist. From a recording of part 1 of a 2-part webinar, February 2023. Dr Braden discusses accommodations to work around the challenges and harness the strengths of a child or adult living with Fragile X syndrome, in a range of learning environments – in the home, school, workplace setting or in the community.
Fragile X Podcasts
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Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.
