Research Study: Early Sleep Interventions to Improve Outcomes in Children with Neurodisability

May 18th, 2023

The Child Health Research Centre in Queensland is leading an Australia-wide three-year multi-centre study to enable early effective sleep interventions to improve functional outcomes and quality of life in children with neurodisability:

  • Queensland Children’s Hospital (QCH)- Associate Professor Jasneek Chawla
  • Children’s Hospital at Westmead (CHW)- Professor Karen Waters
  • Royal Children’s Hospital Melbourne (RCH) – Dr Moya Vandeleur

The Objective of the study is to improve quality of life and functional outcomes in children with ND by modifying sleep.  The Overall goal is to develop NATIONAL guidelines for the diagnosis and management of sleep problems in children with neurodisability.  Fragile X syndrome is one of the conditions that sits within the banner of neurodisability.

Phase 1 of this study (a survey) is investigating three research questions:

1.What is the prevalence of sleep problems in children with neurodisability?
2.What are the sleep health priorities for families of children with neurodisability (consumer perspective)?
3. What are the current management strategies used to treat sleep problems in children with neurodisability?

The SURVEY has 4 sections and takes around 20 minutes to complete.


End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

Fragile X Logo
Registered Charity Logo