FXAA Annual Report 2023

Our Annual Report is a comprehensive roundup of our programs and activities this past year and pays tribute to the late Professor Gillian Turner AO, whose groundbreaking work played a key role in the discovery of the genetic basis of Fragile X syndrome. It covers our work in supporting the Fragile X community through counselling, peer connections and advocacy. Our FX webinar program. Increasing understanding of Fragile X syndrome and Fragile X Premutation Associated Conditions. World Fragile X Day. Fundraising. Our Supporters. And more!

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Christmas & Season’s Greetings Cards – new for 2023

For 2023: printed Christmas cards in 3 designs, and a "Season's Greeting" design. A lovely personal way to wish friends and family all the best at this time of year.

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Medicare funded – Reproductive Genetic Carrier Testing for Fragile X syndrome, Cystic Fibrosis and Spinal Muscular Atrophy

1 in 20 people carry a gene change for Cystic Fi­brosis (CF), Fragile X syndrome (FXS), or Spinal Muscular Atrophy (SMA), and most are unaware that they are carriers. arrier screening is a genetic test that can tell people if they have an increased chance of having children with an inherited genetic condition. From 1st November 2023, there will be a new Medicare item number that will cover reproductive genetic carrier testing for Cystic Fibrosis, Fragile X syndrome and Spinal Muscular Atrophy for people planning a pregnancy or in early pregnancy.

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Annual General Meeting 2023,19 November 3-4pm AEDT

Join us! As we celebrate Awards for achievements by members of the FX community, thank the volunteers who are behind our successes, review our programs over the past year, vote on nominations to the Board, and take a look at what's on the horizon for 2024. Online via Zoom.

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22 July : Australia Lights up for World Fragile X Day!

World Fragile X Day is 22 July, and celebrated in many countries around the world including Australia. Since 2016 Fragile X Association of Australia has invited significant landmarks across Australia to illuminate “ORANGE” on this day, orange being the signature colour for Fragile X in Australia. 2023 was set to be a standout!

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Research Study: Early Sleep Interventions to Improve Outcomes in Children with Neurodisability

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Clinical trial in Fragile X syndrome – 4 Australian sites

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Report: Exploring experiences with online peer support programs for the Fragile X community

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Congratulations Mrs Margaret Cunningham AM Australia Day Honours list 2023

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Australia lit up for World Fragile X Day 2022!

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ABC RN Interview – Fragile X syndrome, with Dr Cynthia Roberts

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Annual Report 2020-2021

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