News & Events

Webinar/Q&A events coming up

September 27th, 2023

Join us for the next FX information sessions - DR JONATHAN COHEN (Medical Director of Fragile X Alliance Clinic) will discuss the current knowledge on the Fragile X Premutation Associated Conditions - 19th October 2023. - DR JENNIFER EPSTEIN (licensed psychologist) will present a 2-part discussion on Toileting supports and strategies for children and adults living with Fragile X syndrome (18th November, 2 December). - DR MARCIA BRADEN (licensed psychologist) will give a detailed discussion on Anxiety and Fragile X syndrome and support strategies. (date tba)

News

Acquisition of Zynerba Pharmaceuticals by Harmony Biosciences

August 16th, 2023

Zynerba Pharmaceuticals Inc and Harmony Biosciences Holdings Inc have announced that Harmony Biosciences has entered into a definitive arrangement to acquire Zynerba Pharmaceuticals. Harmony Biosciences is committed to continuing Zynerba's RECONNECT clinical trial which is underway in Australia and internationally to evaluate the efficacy of an investigative synthetic CBD gel product in helping with behaviours associated with Fragile X syndrome. 

News

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World Fragile X Day!

22 July | Celebrating everyone living with Fragile X and acknowledging the work being done to ensure early diagnosis and access to future treatments. Your support will help enable us to provide support to the Fragile X community around Australia through our HelpLine, specialist counselling, peer connections, educational webinars, referrals and advocacy. We are grateful for your lead.

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