Webinar/Q&A events coming up

Join us for the next FX information sessions - DR JONATHAN COHEN (Medical Director of Fragile X Alliance Clinic) will discuss the current knowledge on the Fragile X Premutation Associated Conditions - 19th October 2023. - DR JENNIFER EPSTEIN (licensed psychologist) will present a 2-part discussion on Toileting supports and strategies for children and adults living with Fragile X syndrome (18th November, 2 December). - DR MARCIA BRADEN (licensed psychologist) will give a detailed discussion on Anxiety and Fragile X syndrome and support strategies. (date tba)

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AGM 2023 | BOARD NOMINATIONS OPEN TO 17 OCTOBER 2023

The Annual General Meeting 2023 will be held on Sunday 19th November 3:00pm AEDT. At the AGM, four Board members whose current terms are due to expire will each nominate to serve a further 2-year term. The AGM Notice and Zoom details will be emailed to members at least 3 weeks in advance of the meeting.

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Catch up on our webinars | Medications & FX | Sensory processing and FX

If you missed our recent webinars, catchup online. Medications and Fragile X syndrome with Dr Jonathan Cohen (August) and Sensory Processing and Fragile X syndrome with Bev Kadish (June 2023).

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Annual General Meeting 2023 | Sunday 19 November 3-4pm

The Annual General Meeting is a great opportunity to reflect on the activities and advances in the past year and look at what lies ahead. The AGM will be held via Zoom.

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Acquisition of Zynerba Pharmaceuticals by Harmony Biosciences

Zynerba Pharmaceuticals Inc and Harmony Biosciences Holdings Inc have announced that Harmony Biosciences has entered into a definitive arrangement to acquire Zynerba Pharmaceuticals. Harmony Biosciences is committed to continuing Zynerba's RECONNECT clinical trial which is underway in Australia and internationally to evaluate the efficacy of an investigative synthetic CBD gel product in helping with behaviours associated with Fragile X syndrome. 

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Webinar 10th August | Medications and Fragile X syndrome

Dr Jonathan Cohen MD will present a discussion of conditions associated with Fragile X syndrome and the types of medications which may be recommended to treat these conditions, which include anxiety, ADHD, aggression and self-injury, OCD, mood disorders, epilepsy and sleep disorders. Followed by Q&A.

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22 July : Australia Lights up for World Fragile X Day!

World Fragile X Day is 22 July, and celebrated in many countries around the world including Australia. Since 2016 Fragile X Association of Australia has invited significant landmarks across Australia to illuminate “ORANGE” on this day, orange being the signature colour for Fragile X in Australia. 2023 was set to be a standout!

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FX Webinar/Q&A series – FXS Research Roundups and future webinars

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Webinar | Sensory Processing and Fragile X syndrome, 29 June 2023 8pm AEST

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Research Study: Early Sleep Interventions to Improve Outcomes in Children with Neurodisability

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Sleep disorders and Fragile X – webinar 18th May

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Clinical trial in Fragile X syndrome – 4 Australian sites

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