The AGM agenda includes:

1.    Achievement Awards and Volunteer Awards 2024
2.   Reports from the President and Treasurer
3.    Year in Review and Annual Report 2024
4.   Proposed Resolution for the amendment of the FXAA Constitution 2023
(Proposed changes reflect updated ‘charitable objects’ for FXAA,  specify that FXAA is a Non-profit organisation, and propose some minor updates to other wording in the current Constitution.)

Followed by

• Voting on Board nominations (online poll)
Two of the current Board members have re-nominated to serve a further term on the Board: President Cynthia Roberts PhD and Vice-President Prof W Ted Brown MD PhD. 
Two members have nominated for a position on the Board:  Dr Lawrie Bott MD and Andrew Fleming LLB

• Short presentations
o  Fragile X Care | Adults and Ageing – Update
This is the first Australian study on adults and Fragile X syndrome, being undertaken by FXAA in collaboration with our project partner Centre for Disability Studies (affiliate of University of Sydney).   This 3-year project has been funded by a grant made to FXAA by the Henroth Group.

o Treatments for Fragile X syndrome – What’s on the Horizon?  
Prof W Ted Brown will provide an update on the ongoing RECONNECT clinical trial which is taking place in several countries including Australia, and present an overview of other clinical trials which are exploring the effectiveness of proposed targetted treatments for symptoms of Fragile X syndrome.

o Reproductive Carrier Screening for Fragile X – Update
Pre/early pregnancy testing for carrier status for Fragile X, Cystic Fibrosis and Spinal Muscular Atrophy is now publicly funded via Medicare. FXAA President Cynthia Roberts will report on the uptake of this testing over the past 12 months.

The complete agenda for the AGM is included below.

DOCUMENTS FOR THE MEETING:
1.  AGM 2024 Notice and Agenda
FXAA_AGM 1 Dec 2024_Notice of Meeting

2. Minutes from the AGM 2023

3.  Resolution to amend FXAA’s Constitution 2023 
(a)  Special Resolution paper describing the proposed changes to the Constitution
Special Resolution paper for AGM 2024_Constitution

(b)  Current Constitution 2023 – link here

(c)  Proposed FXAA Constitution 2024 – link here

4. Brief bios of members who nominating/re-nominating for positions on the Board.
FXAA Director Nomination Bios_AGM Notice_2024

RSVP – 22 November 2024.
Register to attend and RSVP via Zoom:
https://us02web.zoom.us/meeting/register/tZcqcOmvqj0vGdElQb7nyFSST1hw4TmUCDjk