FX Newsletter December 2024

December 16th, 2024

Our latest news!   2024 Lookback – Meet the FXAA Achievement and Volunteer of the Year Award recipients for 2024, and catch up on photo highlights from 2024. Read a tribute to Prof Gillian Turner AO, whose work in understanding the genetics of Fragile X made a difference for so many Australian families. You’ll find an update on our Adults & Ageing research study, as well as a link to the recording of the FX Premutation Update webinar we ran in November.
Looking to 2025: You’ll find dates for new webinars in our series, and links to some handy Back to School resources for parents & educators.  Check out the dates for Disability Expos FXAA will participate in throughout 2025.  Meet our Board members, and read about what might be on the horizon for advances in treatments for Fragile X syndrome in the future.

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Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.

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