Podcasts + videos | our knowledge bank on Fragile X

Our knowledge bank on Fragile X is extensive!  Ideal for early learning about Fragile X, or a refresh. Catch up now, before our FX Webinar Series kicks off again for 2024. We've hosted and recorded many workshops and webinars over the years, featuring leading international and local specialists in Fragile X syndrome and the Fragile X premutation. The video recordings of webinars and workshops are available on our youtube channel, and some of the recordings are podcasts on our channels on Spotify and Apple Podcasts.

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Manly Wharf Bridge to Beach 2024 – supporting Fragile X

The Manly Wharf Bridge to Beach stands as one of Australia’s premier open water paddling events, celebrated globally for its breathtaking spectacle.  It's an 11 km paddle across Sydney Harbour, sponsored by Shaw and Partners Financial Services and  organised every year by Dean Gardiner and the team from Oceanpaddler.   Fragile X Association of Australia is thrilled to be charity partner for this event, raising funds for our important Family Support Counselling service.

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FX Newsletter | December 2023

Wrapping up 2023 and a look at what's on our horizon for 2024! Our research study on Adults/Ageing and Fragile X syndrome. The Zynerba RECONNECT clinical trial extended to March 2024. Our webinar program for 2024. Disability Expos 2024. Congratulating the FXAA Achievement and Volunteer Award winners for 2023. And profiling online learning modules about intellectual disability & mental health; and sensory sensitivities in Fragile X syndrome.

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Fragile X Premutation Conference 2023 – Lived Experience Perspective Summary Paper

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FX Raffle Prize Winners – Announcement

Winning ticket numbers in the FX Raffle which was drawn at the office of Fragile X Association of Australia, Suite 204 20 Dale Street BROOKVALE NSW 2100 on Saturday 9 December at 11am.

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Toileting Strategies Webinar, 2 December – focussing on older children and adults

This 2-part webinar with psychologist Dr Jennifer Epstein addresses challenges that many children and some adults with Fragile X syndrome can experience with toileting – as a developmental issue, an ongoing concern, or as a regression from time to time. On Saturday 2 December the focus is on older children and adults.

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Webinar recording | Toileting Tips & Strategies Part A (children to age 10) with Dr Jennifer Epstein

Psychologist Dr Jennifer Epstein presented research findings and key background information on toileting skill development in children to the age of 10 who have Fragile X syndrome. Dr Epstein addressed practical strategies which parents and carers can use to monitor and to assist progress with toileting skills.

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Webinar recording | Understanding Anxiety & Behaviours in Fragile X syndrome

Webinar recording from 11 November 2023 - Dr Marcia Braden PhD licensed psychologist speaking on Anxiety and Behaviours in Fragile X syndrome.   Addressing what lies behind the anxiety experienced by many children with Fragile X syndrome, how the anxiety impacts daily living, learning and behaviours, and practical strategies that can be put in place to best support the person with Fragile X syndrome.

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FXAA Annual Report 2023

Our Annual Report is a comprehensive roundup of our programs and activities this past year and pays tribute to the late Professor Gillian Turner AO, whose groundbreaking work played a key role in the discovery of the genetic basis of Fragile X syndrome. It covers our work in supporting the Fragile X community through counselling, peer connections and advocacy. Our FX webinar program. Increasing understanding of Fragile X syndrome and Fragile X Premutation Associated Conditions. World Fragile X Day. Fundraising. Our Supporters. And more!

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Christmas & Season’s Greetings Cards – new for 2023

For 2023: printed Christmas cards in 3 designs, and a "Season's Greeting" design. A lovely personal way to wish friends and family all the best at this time of year.

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Medicare funded – Reproductive Genetic Carrier Testing for Fragile X syndrome, Cystic Fibrosis and Spinal Muscular Atrophy

1 in 20 people carry a gene change for Cystic Fi­brosis (CF), Fragile X syndrome (FXS), or Spinal Muscular Atrophy (SMA), and most are unaware that they are carriers. arrier screening is a genetic test that can tell people if they have an increased chance of having children with an inherited genetic condition. From 1st November 2023, there will be a new Medicare item number that will cover reproductive genetic carrier testing for Cystic Fibrosis, Fragile X syndrome and Spinal Muscular Atrophy for people planning a pregnancy or in early pregnancy.

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Annual General Meeting 2023,19 November 3-4pm AEDT

Join us! As we celebrate Awards for achievements by members of the FX community, thank the volunteers who are behind our successes, review our programs over the past year, vote on nominations to the Board, and take a look at what's on the horizon for 2024. Online via Zoom.

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