Life Planning

Adults who have Fragile X syndrome may need ongoing education, support and advocacy throughout their life.

Some people with Fragile X syndrome live independent lives, while others may continue to need support from their family, specialist services and support workers.

Residential accommodations may include:

  • Living independently
  • Supported accommodation
  • In-house support
  • Co-residing with parents or other family members

National Disability Insurance Scheme (NDIS) funding may be available to assist with supports for managing day-to-day living.

There are a range of work options and programs available for people with Fragile X syndrome, after transitioning from a school environment and throughout adulthood.


End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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