Feedback | We want to hear what matters to you

August 31st, 2026

Fragile X Association of Australia supports people with Fragile X-associated conditions, their families and carers, and the professionals who work with them. We provide information, connection, education, counselling, peer support and advocacy to the Fragile X community across Australia.

At the heart of our work is a simple belief: people living with Fragile X deserve to be understood, included and supported to live their best possible lives.

We want to hear what matters to you.

Your ideas and feedback are important to us and will help guide how we support the Fragile X community into the future.

We welcome your feedback on:

  • What you value about FXAA
  • What is working well
  • What could be improved
  • Where you think we should place greater focus

The feedback form will take around 10 minutes to complete.   You don’t need to have used an FXAA service or participated in one of our activities recently in order to provide feedback.

There are 3 ways you can provide your feedback by 21 September:
1.   Share your feedback ONLINE 
2.  Complete a PAPER VERSION of the Feedback form
3.  Provide your feedback to us BY PHONE

Contact us if you would like a PAPER COPY of the Feedback from posted to you or would prefer to provide your feedback BY PHONE with Liz or Wendy.  Contact us by email at  support@fragilex.org.au  OR call us on 1300 394 636

Feedback closes 21 SEPTEMBER

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Support Fragile X Association of Australia

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.

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