May 24th, 2022

With Bev Kadish, occupational therapist, from a webinar recording, 24 May 2022.

In this presentation Bev covers the role Sensory Processing plays in daily life and how the sensory processing disorders some people with Fragile X syndrome experience can impact behaviour. Bev addresses  strategies to help give the person who has Fragile X the best chance to feel calm, alert and organised as a result of appropriate sensory input.

The presenter Beverley Kadish has many years of experience in supporting children and adults who have Fragile X syndrome, both through the Fragile X Alliance clinic in Melbourne and her own private practice WriteStart OT.

Watch the video here:



Survey for parents / carers of adults with Fragile X syndrome

FRAGILE X | ADULTS & AGEING. We're undertaking the first Australian study on the support needs, health & wellbeing of ADULTS with Fragile X syndrome. Our goal is to enhance quality of life for adults with Fragile X syndrome as they age. We invite parents or carers to participate in our SURVEY. The survey has questions about: 1. GENERAL HEALTH AND WELLBEING of the adult with Fragile X syndrome. 2. EFFECTIVENESS OF EXISTING SUPPORTS for the adult with Fragile X syndrome as they age. 3. FUTURE PLANNING concerns of families & carers who provide support 4. ANY GAPS IN SUPPORTS OR SERVICES which may impede best outcomes in care. From the information contributed through the Survey we will develop training modules for frontline carers and tools for advocacy. The Survey can be completed ONLINE, in PAPER FORM, or by PHONE. Contact us for more information - or 1300 394 636

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