Alison Evans


Alison is a corporate communication leader who helps organisations achieve strategic outcomes by aligning people behind a common purpose, inspiring behaviour change, and building stakeholder awareness and advocacy. Her deep change-communication expertise and experience as a radio news journalist have helped FXAA strengthen member communications, grow awareness, and advocate for individuals and families affected by Fragile X–associated conditions.

Following prenatal genetic screening, Alison discovered she is a Fragile X premutation carrier and experienced first-hand the gaps in clinical understanding. She is passionate about bridging these knowledge gaps in the health sector, and more broadly in the community, to ensure families receive timely, accurate, and comprehensive information and care. Alison was first appointed to the Board at the AGM in November 2022 and has served as Secretary since December 2024.   Alison was re-appointed to the Board at the Annual General Meeting on 23 November 2025.

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Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.

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