Webinar Program 2025
Our webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation. The program is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome, planning for the future for a family member living with Fragile X syndrome, health aspects for people who are Fragile X premutation carriers and current research. The webinars are run live on Zoom.
UPCOMING WEBINARS are listed below. Additional webinars will be added to the program as the year progresses.
Recordings of many of our recent webinars are on our youtube channel and podcast platforms (Spotify and Apple).
Recorded webinars presented this year: Sensory diets (sensory processing), FXPOI | What Do I Need to Know, IVF & PGD and Fragile X Testing and Screening and Medications and Fragile X syndrome
Certain webinars are “Live only” and not recorded – for example, the recent Äsk Me Anything the Fragile X Learning Style” with Dr Marcia Braden and webinars on Disability Estate Planning and Special Disability Trusts. Those webinars will be run again live in 2026.
Many thanks to the Qantas Side by Side grant program and to Genea for supporting the production of several of our webinars earlier in 2025.
MICROBOARDS
Jaquie Mills
Managing Director, Microboards Australia
TUESDAY 26 AUGUST 2025, 7:30 pm AEST
Jaquie Mills established Microboards Australia in 2008. Since then she has been a strong advocate for people with a disability. Jaquie also consults to disability leaders and advocated for the rights of people with a disability.
This session will cover the role of Microboards in supporting the future for a person with disability, and how to establish a Microboard for a family member.
UNDERSTANDING FXTAS
Dr Alex Fois
Neurologist
TUESDAY 23 SEPTEMBER 2025, 6:30 – 7:30pm AEST
This webinar will present an overview of Fragile X-associated Tremor Ataxia syndrome (FXTAS). Dr Alex Fois joins us to discuss symptoms of FXTAS, and therapies which may be recommended.
Dr Fois is a specialist neurologist who practices at Harbour Neurology Group (North Sydney), Macquarie University Hospital, and Fraser Coast Neurology (Hervey Bay, Queensland). He has a subspecialty interest and training in movement disorders including Parkinson’s disease, tremor, and dystonia. Dr Fois sees patients who have FXTAS.
The presentation by Dr Fois will be recorded and you can catch up later on youtube. The Q&A will be Live Only.
