Understanding Fragile X
Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.
Fragile X syndrome is an inherited genetic condition that causes intellectual disability, and behavioural and learning challenges.
Fragile X-associated Conditions are inherited conditions caused by alterations (expansions) in the FMR1 gene on the X chromosome.
Fragile X Association of Australia is a member-based organisation and registered charity providing support to people living with Fragile X and their families and carers.
A Microboard is a group of people in unpaid relationships with a person with disability who meet regularly to support that person to make plans, make decisions, be socially included, be safe and well and to have the life they want. The aim of a Microboard is also to safeguard quality of life even when parents/key caregivers are no longer able to. Jaquie Mills, founder of Microboards Australia, joined us to talk about the role Microboards can play in supporting the future of a person with disability and how they can link in with other plans, such as circles of support.