Video: Health Management and Fragile X: A Parent’s Perspective
Cynthia Roberts’ adult son Dan has Fragile X syndrome.
In this 3-minute video Cynthia reflects on the role a GP has in managing Dan’s health, and the challenges posed by Dan’s inability to communicate health issues to those around him.
Cynthia’s message to GPs is that it is VERY important for them to really listen to any concerns the carers may have around the health of their child who has Fragile X syndrome.
Many thanks to thinkgp.com.au for producing this video for Fragile X Association of Australia.
