Video: Health Management and Fragile X: A Parent’s Perspective

July 21st, 2017

Cynthia Roberts’ adult son Dan has Fragile X syndrome.

In this 3-minute video Cynthia reflects on the role a GP has in managing Dan’s health, and the challenges posed by Dan’s inability to communicate health issues to those around him.

Cynthia’s message to GPs is that it is VERY important for them to really listen to any concerns the carers may have around the health of their child who has Fragile X syndrome.

Many thanks to for producing this video for Fragile X Association of Australia.


World Fragile X Day!

World Fragile X Day: 22 July: Celebrating individuals and families who are living with Fragile X and acknowledging the work being done to ensure early diagnosis and future treatments.

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