Supporting Adults Males with Fragile X syndrome in Achieving Independence

March 1st, 2020

Dr Marcia Braden PhD on Females and Fragile X syndrome, video recording from March 2020.

Dr. Marcia Braden discussed the challenges of caring for adult males with Fragile X syndrome as they age.  Dr Braden presents strategies for encouraging the independence and goes on to discuss: supports which take into account the neurobiology of Fragile X syndrome and the consequent developmental delays that will affect daily living; and environmental accommodations that will help the adults successfully participate in work, volunteering and in their community.

Dr Marcia Braden PhD is a psychologist, educator and specialist in Fragile X syndrome.
The video was supported by a grant from the Qantas Foundation Side by Side Grant Program.
Watch the video here: https://youtu.be/jcXv-8rQ5Nc?list=PLrAbbky5xAvbyqKduFb5mX_KY8LWq5jko

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Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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