Webinar Program 2025
Our webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation. The program is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome, planning for the future for a family member living with Fragile X syndrome, health aspects for people who are Fragile X premutation carriers and current research. The webinars are run live on Zoom.
UPCOMING WEBINARS are listed below. Additional webinars will be added to the program as the year progresses.
Recordings of many of our recent webinars are on our youtube channel and podcast platforms (Spotify and Apple).
Recorded webinars presented this year: Sensory diets (sensory processing), FXPOI | What Do I Need to Know, IVF & PGD and Fragile X Testing and Screening and Medications and Fragile X syndrome
Certain webinars are “Live only” and not recorded – for example, the recent Äsk Me Anything the Fragile X Learning Style” with Dr Marcia Braden and webinars on Disability Estate Planning and Special Disability Trusts. Those webinars will be run again live in 2026.
Many thanks to the Qantas Side by Side grant program and to Genea for supporting the production of several of our webinars earlier in 2025.
SOCIAL STORIES AND VISUALS TO SUPPORT ROUTINES & TRANSITIONS
Helen Tozer
FXAA member
MONDAY 20 OCTOBER 2025, 8:00 pm AEDT
Helen Tozer has a degree in early childhood education. She is a mum of two teenagers and her son Josiah was diagnosed with Fragile X syndrome 12 years ago. Helen understands just how important simple, predictable routines can be for families and in this session will share what really works for her family – keeping it practical, real-life, and doable.
She’ll share tips and tricks for creating visuals and social stories as practical tools to help your family support routines and transitions for a young or adult person who has Fragile X syndrome. Her hope is that you’ll leave this webinar with small steps and ideas to make routines and adventures feel calmer, more manageable and more connected for everyone!
Join us LIVE on Zoom for Helen’s presentation & Q&A -or catchup on the recording later on youtube
UNDERSTANDING FXTAS
Dr Alex Fois
Neurologist
BSc(Adv; Hons I, Medal) BM BCh(Oxon) | MRCP FRACP
RECORDING AVAILABLE ON YOUTUBE SPOTIFY APPLE PODCASTS
On 23 September 2025 specialist neurologist Dr Alex Fois presented a discussion on FXTAS, a late onset neurological condition which affects some carriers of the Fragile X premutation. The presentation covered:
- overview of the role the FMR1 gene plays in Fragile X-associated conditions;
- what causes FXTAS
- what is known about the incidence and onset of FXTAS
- a discussion of the type and variability of symptoms and how symptoms may vary amongst men and women
- how FXTAS is clinically diagnosed
- some therapies /treatments that may help with management of symptoms.Dr Alex Fois BSc(Adv; Hons I, Medal) BM BCh(Oxon) | MRCP FRACP is a neurologist who practices at Harbour Neurology Group (North Sydney), Macquarie University Hospital, and Fraser Coast Neurology (Queensland). He has a subspecialty interest and training in movement disorders including Parkinson’s disease, tremor, and dystonia.
