Webinar Program
Our 2025 webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation. Our webinars and Q&A sessions run live on Zoom.
The webinar program is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome, planning for the future for a family member living with Fragile X syndrome, and health aspects for women who are Fragile X premutation carriers.
Recordings of many of our recent webinars are on our youtube channel and podcast platforms (Spotify and Apple).
Recent webinars include: FXPOI | What Do I Need to Know (March 2025) , IVF & PGD and Fragile X Testing and Screening (April 2025), Medications and Fragile X syndrome (February 2025) and an Update on the Fragile X FMR1 Premutation (November 2024)
Certain webinars are “Live only” and not recorded – for example, the recent Äsk Me Anything the Fragile X Learning Style” with Dr Marcia Braden and webinars on Disability Estate Planning and Special Disability Trusts with Margaret Duncan, Principal Lawyer with Duncan Legal. These webinars will be run live again in 2026.
UPCOMING WEBINARS are listed below. Additional webinars will be added to the program as the year progresses.
Many thanks to the Qantas Side by Side grant program and to Genea for supporting the production of several of our webinars in 2025.
Sensory diets and Fragile X syndrome
Bev Kadish
Write Start Occupational Therapy
THURSDAY 12 JUNE 2025, 7:30 pm AEST
Bev Kadish is an Occupational Therapist with many years of experience in supporting children and adults with Fragile X syndrome, both through her own private practice and with the Fragile X Alliance Clinic.
Heightened and dysregulated sensory sensitivity is a very common for children and adults who have Fragile X syndrome, and can impact behaviours and daily living. In this webinar Bev will discuss how the sensory processing disorders can affect individuals and present sensory diets as a strategy to help give the person who has Fragile X syndrome the best chance to feel calm, alert and organised as a result of appropriate sensory input.
FRAGILE X RESEARCH ROUNDUP
Presenters include Katie Clapp, Co-Founder FRAXA Research Foundation
Moderated by Dr Claudine Kraan PhD, Murdoch Children’s Research Institute
THURSDAY 17 JULY 2025, 8:00 pm AEST
Moderated by Dr Claudine Kraan PhD, Vice-Chair of the Fragile X Scientific, Clinical and Research Committee.
This session will cover
* International developments in research on Fragile X syndrome – presented by Katie Clapp, Co-Founder FRAXA Research Founcation
* Fragile X Care | Adults & Ageing – an update on the research study being undertaken by Fragile X Association of Australia and Centre for Disability Studies (affiliate of University of Sydney)
* Other Australian research studies related to Fragile X.
MICROBOARDS
Jaquie Mills
Managing Director, Microboards Australia
TUESDAY 26 AUGUST 2025, 7:30 pm AEST
Jaquie Mills established Microboards Australia in 2008. Since then she has been a strong advocate for people with a disability. Jaquie also consults to disability leaders and advocated for the rights of people with a disability.
This session will cover the role of Microboards in supporting the future for a person with disability.
