The latest FX Info newsletter has been published today.
Including news of a government seeking feedback for its review of the NDIS participant experience, and NDIA funding of disability-related health supports commencing from 1 October. Luciana shares her family’s Fragile X story. Latest on the films Fragile X: 3 Australian families and Stuart X. Fundraisers, Fragile X Awareness Month of July, and more!
Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.
