FX Info September newsletter

September 27th, 2019

The latest FX Info newsletter has been published today.
Including news of a government seeking feedback for its review of the NDIS participant experience, and NDIA funding of disability-related health supports commencing from 1 October. Luciana shares her family’s Fragile X story.   Latest on the films Fragile X: 3 Australian families and Stuart X.  Fundraisers, Fragile X Awareness Month of July, and more!


End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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