Fragile X Newsletter October 2017

October 11th, 2017

The October newsletter profiles the Fragile X Community Days in Brisbane and Hobart – which will feature experts Dr Marcia Braden, educational psychologist and special educator from the US, and Dr Jonathan Cohen from the Fragile X Alliance Clinics in Melbourne.

Other news includes updates on research endeavours, and a recent media campaign on Fragile X carrier screening.

Raising awareness and some fundraising efforts were a highlight in July, and our ongoing campaign to generate increased awareness of Fragile X in the medical community have culminated in video resources on the ThinkGP education portal for GPs.

All this and more in the October newsletter:

Share:
Menu
Menu
Menu
Menu

End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

Donate
Fragile X Logo
Registered Charity Logo