FEMALES AND FRAGILE X SYNDROME | UNDERSTANDING THE CHALLENGES

February 19th, 2022

Dr Marcia Braden PhD on Females and Fragile X syndrome, webinar recording from 19 February 2022.

Girls and women who have Fragile X syndrome are affected differently than boys who have Fragile X. The strengths, challenges, and deficits which they often encounter are best supported with specific understanding and strategies.

Dr Braden highlights the impact of the anxiety associated with Fragile X syndrome and how it presents at different developmental levels. She talks about learning deficits which can be a challenge for girls and women who have Fragile X syndrome and presents practical strategies which will support successful learning, daily living skills and relationship development.

Dr Marcia Braden PhD, is a psychologist, educator and specialist in Fragile X syndrome.

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Survey for parents / carers of adults with Fragile X syndrome

FRAGILE X | ADULTS & AGEING. We're undertaking the first Australian study on the support needs, health & wellbeing of ADULTS with Fragile X syndrome. Our goal is to enhance quality of life for adults with Fragile X syndrome as they age. We invite parents or carers to participate in our SURVEY. The survey has questions about: 1. GENERAL HEALTH AND WELLBEING of the adult with Fragile X syndrome. 2. EFFECTIVENESS OF EXISTING SUPPORTS for the adult with Fragile X syndrome as they age. 3. FUTURE PLANNING concerns of families & carers who provide support 4. ANY GAPS IN SUPPORTS OR SERVICES which may impede best outcomes in care. From the information contributed through the Survey we will develop training modules for frontline carers and tools for advocacy. The Survey can be completed ONLINE, in PAPER FORM, or by PHONE. Contact us for more information - support@fragilex.org.au or 1300 394 636

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