Kate McKeand

Kate is a parent of  two children who have Fragile X syndrome.

Kate currently works as an engineer in energy and sustainability policy.  Previously she has been a director of a consulting organisation specialising in supporting and empowering participants in the NDIS, and has also represented families of children with disabilities on a number of consumer and advocacy bodies. In her spare time, Kate is working on training a gorgeous but mischievous assistance dog for her family. Kate is based in Melbourne. She joined the Board in 2018 and was re-appointed to the Board for a third term at the Annual General Meeting on 20 November 2022.

 

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Survey for parents / carers of adults with Fragile X syndrome

FRAGILE X | ADULTS & AGEING. We're undertaking the first Australian study on the support needs, health & wellbeing of ADULTS with Fragile X syndrome. Our goal is to enhance quality of life for adults with Fragile X syndrome as they age. We invite parents or carers to participate in our SURVEY. The survey has questions about: 1. GENERAL HEALTH AND WELLBEING of the adult with Fragile X syndrome. 2. EFFECTIVENESS OF EXISTING SUPPORTS for the adult with Fragile X syndrome as they age. 3. FUTURE PLANNING concerns of families & carers who provide support 4. ANY GAPS IN SUPPORTS OR SERVICES which may impede best outcomes in care. From the information contributed through the Survey we will develop training modules for frontline carers and tools for advocacy. The Survey can be completed ONLINE, in PAPER FORM, or by PHONE. Contact us for more information - support@fragilex.org.au or 1300 394 636

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