Belinda D’Amico


Belinda has two young boys with Fragile X syndrome and lives in Sydney. She is a registered Chartered Accountant, although not currently practising since the boys’ diagnosis.  Belinda has commenced an Occupational Therapy degree course as she wants to help her sons and other families on the Fragile X journey and has also recently started an online business.

Belinda says she is extremely passionate about raising awareness of Fragile X syndrome and keen to support the Fragile X community. Belinda has been involved with FXAA since her boys’ diagnoses in early 2020.  Belinda has fundraised for FXAA  is committed to representing FXAA at a range of disability expos.  Belinda was re-appointed to the Board at the Annual General Meeting on 19 November 2023.

 

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Survey for parents / carers of adults with Fragile X syndrome

FRAGILE X | ADULTS & AGEING. We're undertaking the first Australian study on the support needs, health & wellbeing of ADULTS with Fragile X syndrome. Our goal is to enhance quality of life for adults with Fragile X syndrome as they age. We invite parents or carers to participate in our SURVEY. The survey has questions about: 1. GENERAL HEALTH AND WELLBEING of the adult with Fragile X syndrome. 2. EFFECTIVENESS OF EXISTING SUPPORTS for the adult with Fragile X syndrome as they age. 3. FUTURE PLANNING concerns of families & carers who provide support 4. ANY GAPS IN SUPPORTS OR SERVICES which may impede best outcomes in care. From the information contributed through the Survey we will develop training modules for frontline carers and tools for advocacy. The Survey can be completed ONLINE, in PAPER FORM, or by PHONE. Contact us for more information - support@fragilex.org.au or 1300 394 636

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