Alison Evans


Alison is a Corporate Communications professional based in Newcastle and has spent the last 15 years helping organisations achieve their strategic outcomes by aligning people behind a common purpose, inspiring behavioural change, and building stakeholder awareness and advocacy. She has worked for ASX-listed and global companies both in Australia and the United Kingdom. Alison has worked as a radio news journalist and is experienced in media and public relations. Alison discovered she is a Fragile X premutation carrier following genetic screening during pregnancy. After finding her health support providers to be lacking knowledge about Fragile X, she has become passionate about increasing awareness of Fragile X within the general public and medical communities alike. Alison was appointed to the Board at the AGM on 20 November 2022.

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End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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