The Fragile X Association of Australia is a non-profit organisation made up of family, friends, therapists, doctors and carers of people with Fragile X Syndrome.

Our aims

To help people with Fragile X to realise their full potential, provide information and support to those people whose lives have been affected by Fragile X, promote acceptance and integration of people with Fragile X into the community and to raise public awareness of Fragile X Syndrome.

We aim to Promote the detection, relief, treatment and prevention of Fragile X through:

• Supporting intervention and other programs in relation to Fragile X
• Supporting research into Fragile X
• Promoting awareness and education in relation to Fragile X through lectures, meetings, classes, conferences, seminars and the publication of booklets, reports and media releases
• Advising and lobbying government and other agencies.

Enrich the lives of those who are impacted by Fragile X by offering channels for educational and emotional support by:

• Providing points of contact for families to support and information.
• Encouraging mutual support among our members.
• Producing and distributing information on Fragile X.
• Peer Counselling.
• Holding information sessions, conferences and social get-togethers.
• Producing a quarterly newsletter.

To directly aid people with Fragile X syndrome through any or all of the following:

• Medical treatment
• Diagnosis and assessment
• Counselling
• Speech and language therapy
• Occupational therapy and physiotherapy, assistive technology support and vocational support
• Case management

Our Committee

The Association is run by a committee of volunteer parents and friends of people affected by Fragile X Syndrome. The profile page contains information about each committee member.

We welcome the participation of our members and the involvement of those who can offer their expertise to our Association. The Association has a major task in achieving its objectives. We need support from all groups in our society especially those directly involved with Fragile X. Your support through joining the Association is of great importance and very much appreciated.

Financial Statements

• FXAssociation-FinancialStatements-2009.pdf – PDF File

Funding

Currently, we are funded by membership subscriptions, donations and fundraising . Our volunteers put a great deal of effort into participating in efforts to search for supporters, benefactors, philanthropic donations and fundraising activities. The Fragile X Association of Australia has been granted authorisation to fundraise by the NSW State Government- CFN 10563, the QLD State Government – CH1758, the VIC State Government - 10076, the SA State Government – CCP1380 and the WA State Government – 21029.  In 2002 was granted benevolent status making all donations over $2.00 tax deductible.

Site Liability Disclaimer

It is very important for all users of this website to understand and accept that the Fragile X Association of Australia as a charitable organization presents a wide range of information and links relevant to Fragile X Syndrome on the site as general information only. The Association cannot accept any legal liability for the information on the site or the use made of it. All users must review the Site Liability Disclaimer and Copyright page of this site.