In August 2015 with Dr Randi Hagerman and Dr Paul Hagerman presented at Fragile X workshops in Melbourne, Perth and Sydney.
It was something of a whirlwind trip! They gave presentations and met families in Melbourne, Perth and Sydney, and presented to a range of medical professionals and researchers interested in Fragile X, including paediatricians, neurologists and geneticists.
SPONSORSHIP THANKS: The Hagermans’ visit to Australia was hosted by Fragile X Association of Australia with generous support from Royal Bank of Canada and Neuren Pharmaceuticals. Kids Are Kids Therapy & Education Centre in Perth, and Community Living and Participation Grants (WA) and Developmental Disability WA.
Videos of some of the presentations from the workshops are available on our youtube channel:
Dr Randi Hagerman
* New Advances in FXS and Treatments
* Premutation Carrier Involvement and Treatment
Dr Paul Hagerman
* FXTAS: An Older Face of the Fragile X Gene
Cathy Love Board member of Fragile X Association
* Local Supports for FXS
(profiling the experienced health professionals available in Melbourne, the Fragile X Alliance Clinic, and the counselling service provided by Fragile X Association)
Dr Claudine Kraan
* Females who carry an FMR1 premutation: Can research make a difference? (an overview of research in Australia)