Research Study open: Online peer support for the Fragile X community

August 3rd, 2022

The Melbourne Disability Institute is exploring barriers and facilitators to online peer support in the Fragile X community in Australia.
The research team is keen to interview people who

* have a Fragile X disorder (that is, Fragile X syndrome, FX-associated Primary Ovarian Insufficiency, or FX-associated Tremor Ataxia syndrome) OR care for someone who has a Fragile X disorder
have participated in one our online programs.  (FXAA webinars, Zoom-based peer support calls, the FXAA facebook discussion group)

Participation involves a 30-minute phone or Zoom call, at a time that would suit you.   The interviewer will be a researcher from Melbourne Disability Institute.

If you’re interested in sharing your thoughts on your experience of online peer support, please register here:


World Fragile X Day!

World Fragile X Day: 22 July: Celebrating individuals and families who are living with Fragile X and acknowledging the work being done to ensure early diagnosis and future treatments.

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