Research Study open: Online peer support for the Fragile X community
The Melbourne Disability Institute is exploring barriers and facilitators to online peer support in the Fragile X community in Australia.
The research team is keen to interview people who
* have a Fragile X disorder (that is, Fragile X syndrome, FX-associated Primary Ovarian Insufficiency, or FX-associated Tremor Ataxia syndrome) OR care for someone who has a Fragile X disorder
* have participated in one our online programs. (FXAA webinars, Zoom-based peer support calls, the FXAA facebook discussion group)
Participation involves a 30-minute phone or Zoom call, at a time that would suit you. The interviewer will be a researcher from Melbourne Disability Institute.
If you’re interested in sharing your thoughts on your experience of online peer support, please register here: