News

Webinar recording | Understanding Anxiety & Behaviours in Fragile X syndrome

November 21st, 2023

Webinar recording from 11 November 2023 - Dr Marcia Braden PhD licensed psychologist speaking on Anxiety and Behaviours in Fragile X syndrome.   Addressing what lies behind the anxiety experienced by many children with Fragile X syndrome, how the anxiety impacts daily living, learning and behaviours, and practical strategies that can be put in place to best support the person with Fragile X syndrome.

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Medicare funded – Reproductive Genetic Carrier Testing for Fragile X syndrome, Cystic Fibrosis and Spinal Muscular Atrophy

October 27th, 2023

1 in 20 people carry a gene change for Cystic Fi­brosis (CF), Fragile X syndrome (FXS), or Spinal Muscular Atrophy (SMA), and most are unaware that they are carriers. arrier screening is a genetic test that can tell people if they have an increased chance of having children with an inherited genetic condition. From 1st November 2023, there will be a new Medicare item number that will cover reproductive genetic carrier testing for Cystic Fibrosis, Fragile X syndrome and Spinal Muscular Atrophy for people planning a pregnancy or in early pregnancy.

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We're fundraising for our Family Support service!

The spectacular Bridge to Beach paddle race raises funds to help us support, connect and advocate for families around Australia! You can make a difference for the Fragile X community by making a donation to our Bridge to Beach campaign today! Donations of $2.00 and over are tax deductible.

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