FX newsletter June 2017

June 27th, 2017

Our June newsletter covers a range of family stories, the work being done to increase understanding of Fragile X in the medical and allied health communities, and Fragile X Awareness Month in July.

There is also a focus on a recent study which concluded that 37% of deaths of adults with intellectual disability in NSW are preventable.  This story also profiles the Comprehensive Health Assessment Program (CHAP), which is a resource intended to support GPs caring for adults with intellectual disability.

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World Fragile X Day!

World Fragile X Day: 22 July: Celebrating individuals and families who are living with Fragile X and acknowledging the work being done to ensure early diagnosis and future treatments.

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