Our June newsletter covers a range of family stories, the work being done to increase understanding of Fragile X in the medical and allied health communities, and Fragile X Awareness Month in July.

There is also a focus on a recent study which concluded that 37% of deaths of adults with intellectual disability in NSW are preventable.  This story also profiles the Comprehensive Health Assessment Program (CHAP), which is a resource intended to support GPs caring for adults with intellectual disability.