Mandy Barker

Mandy is a freelance social media manager and virtual assistant, and lives in Brisbane. Her son was diagnosed with Fragile X syndrome at age 8. He had previously been diagnosed with Autism and received appropriate supports, although the diagnosis had not fully explained his developmental delays. Shortly after this surprise diagnosis her older daughter was also found to have Fragile X syndrome.

Mandy is a keen advocate: for awareness of Fragile X and Intellectual Disability in the broader community; earlier diagnosis by GPs & medical professionals; the availability of broader genetic screening; and inclusivity in everyday life for our very special Fragile X family members. Mandy has been involved with FXAA since 2017, and was re-appointed to the Board at the AGM on 19 November 2023.

 

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End of Financial Year donation will make a difference

Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation (no matter how big or small) will help us maintain and deliver support and connections to the Fragile X community: 1. Counselling support 2. FXAA Helpline - available 5 days per week 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing study that we’re undertaking collaboratively with the Centre for Disability Studies is the first Australian study on the support needs, health & wellbeing of adults with Fragile X Syndrome as they age. All support is sincerely appreciated and helps us make a difference.

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