The 2016 Annual General Meeting of Fragile X Association of Australia Inc: Date: Sunday 9 October, 2016 Time: 2:00 – 3:00 pm Location: Fragile X Association of Australia Office, Suite 6, Level 3, 39 East Esplanade, Manly, New South Wales, 2095
The winner of the Fragile X Fundraising Raffle 2016 was L Bradley from Brisbane.
On July 31 2016, Sydney long distance runner Mike Tozer broke the world record for running a half marathon in a business suit. He was one of 600 athletes taking part in the Westlink M7 Blacktown Running Festival, but the only one who was dressed in a 3 piece suit.
This booklet is designed to encourage women who are Fragile X premutation carriers to take control of their own health and to pass on this information to their families and if needed, health care professionals.
The March 2016 edition of the Scientific American MIND journal included a comprehensive article about Fragile X syndrome and carriers of Fragile X.
The challenges faced by people who have Fragile X syndrome in securing employment opportunities are many. In this 3-minute film Zoe, Marty, and Rosie share their experiences in looking for work.
At the HealthEd GP Education Day held in Melbourne in October 2015, Dr Jane Tracy from the Centre for Developmental Disability Health Victoria gave an excellent presentation titled “GPs, Healthcare and Patients with Intellectual Disability and/or Autism”.
In August 2015 with Dr Randi Hagerman and Dr Paul Hagerman presented at Fragile X workshops in Melbourne, Perth and Sydney.
A 30-minute Q&A with Dr Randi Hagerman on Fragile X syndrome, about Fragile X carrier health perspectives and FXTAS.
The Fragile X Association of Australia and NZ Fragile X Trust (now Fragile X New Zealand) conducted the first national survey of Fragile X families in Australia and New Zealand in 2009.
Dr Marcia Braden, internationally renowned expert in learning and behavioural support strategies in Fragile X answers a series of questions provided by our member base.
The full-day workshop will feature presentations by Dr Marcia Braden, world-renowned psychologist and expert in education and behaviour management of children and adolescents with Fragile X syndrome, and Dr Jonathan Cohen, Medical Director of Fragile X Alliance Clinic.
Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions.
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