This article, written by Dr Jonathan Cohen, Professor Sylvia Metcalfe, and Dr Alison Archibald for Medical Observer in 2012 provides an excellent and still current overview of Fragile X syndrome and its associated disorders.
The winner of the surfboard donated to Fragile X Association of Australia by Bede Durbidge, his wife Tarryn and Bede’s sponsors is Chanelle Avison from Queensland!
In our December newsletter: Achievement Award winners. A wrapup of the festival of orange that is Fragile X awareness month! Meet our new Board. Member stories.
Young women with the FMR1 pre-mutation ie, young women who are carriers of Fragile X, are at risk of premature ovarian failure.
Our Annual Report 2015-2016 presents a great overview of the past financial year.
Fragile X Carrier Family / FXTAS Clinic is a dedicated monthly service for carriers of Fragile X, initially for those who have some concerns about or may be at risk of developing FXTAS – Fragile X-associated Tremor Ataxia syndrome.
The 2016 Annual General Meeting of Fragile X Association of Australia Inc: Date: Sunday 9 October, 2016 Time: 2:00 – 3:00 pm Location: Fragile X Association of Australia Office, Suite 6, Level 3, 39 East Esplanade, Manly, New South Wales, 2095
The winner of the Fragile X Fundraising Raffle 2016 was L Bradley from Brisbane.
On July 31 2016, Sydney long distance runner Mike Tozer broke the world record for running a half marathon in a business suit. He was one of 600 athletes taking part in the Westlink M7 Blacktown Running Festival, but the only one who was dressed in a 3 piece suit.
This booklet is designed to encourage women who are Fragile X premutation carriers to take control of their own health and to pass on this information to their families and if needed, health care professionals.
The March 2016 edition of the Scientific American MIND journal included a comprehensive article about Fragile X syndrome and carriers of Fragile X.
The challenges faced by people who have Fragile X syndrome in securing employment opportunities are many. In this 3-minute film Zoe, Marty, and Rosie share their experiences in looking for work.
Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions.
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