FX Info September newsletter
Board: Call for nominations
Fragile X workshop in Victoria for disability service providers and carers, Nov 2019
Fragile X takes on the Manly Fun Run Sunday 1 September
Annual General Meeting: Sunday 27th October
Celebrating Fragile X Awareness: Dance to Geronimo
Stuart X: Film Festival Screenings
Stuart X is a 5-minute film which tells the story of Stuart Iredale. Stuart was born in the 1950's and it was a long journey before the cause of his intellectual disability was diagnosed as Fragile X.
CONNECT-FX trial open to 29 November 2019
The CONNECT-FX study is running in Australia, New Zealand and the US, to study an investigational drug in gel form called Zygel, manufactured by Zynerba Pharmaceuticals.
Trivia Night fundraiser at Manly Golf Club Sydney, 28th August
Fundraising! Raffle, prizes and amazing holiday prize on offer: 5-night holiday for 2 at the exclusive and extraordinary Orpheus Island Lodge, a package valued at $11,500! Book tickets online!
Lighting up for Fragile X in July
July is Fragile X Awareness Month. A highlight this year has been the annual "lightupforfx" campaign, with 14 landmarks across Australia lighting up ORANGE for Fragile X on 22 July!
Survey on costs to families of raising and caring for children and adults with Fragile X syndrome
“The national FreeFX study, led by Associate Professor David Godler at the Murdoch Children’s Research Institute in Melbourne, aims to test a number of new highly accurate laboratory methods which can tell us about a person’s level of the FMR1 gene activity.