Fragile X takes on the Manly Fun Run Sunday 1 September
Annual General Meeting: Sunday 27th October
Celebrating Fragile X Awareness: Dance to Geronimo
Stuart X: Film Festival Screenings
Stuart X is a 5-minute film which tells the story of Stuart Iredale. Stuart was born in the 1950's and it was a long journey before the cause of his intellectual disability was diagnosed as Fragile X.
CONNECT-FX trial open to 29 November 2019
The CONNECT-FX study is running in Australia, New Zealand and the US, to study an investigational drug in gel form called Zygel, manufactured by Zynerba Pharmaceuticals.
Trivia Night fundraiser at Manly Golf Club Sydney, 28th August
Fundraising! Raffle, prizes and amazing holiday prize on offer: 5-night holiday for 2 at the exclusive and extraordinary Orpheus Island Lodge, a package valued at $11,500! Book tickets online!
Lighting up for Fragile X in July
July is Fragile X Awareness Month. A highlight this year has been the annual "lightupforfx" campaign, with 14 landmarks across Australia lighting up ORANGE for Fragile X on 22 July!
Survey on costs to families of raising and caring for children and adults with Fragile X syndrome
“The national FreeFX study, led by Associate Professor David Godler at the Murdoch Children’s Research Institute in Melbourne, aims to test a number of new highly accurate laboratory methods which can tell us about a person’s level of the FMR1 gene activity.
Fragile XPA Launch Fundraiser at 7th Day Brewery
On 4th July the 7th Day Brewery in Brookvale, Sydney, hosted a fundraiser for Fragile X Association, initiated by Vanessa and Cam from LindsioEvents. It was a fabulous night with a raffle, music provided by performers from Tuned In Music Therapy from Brookvale.
Fragile X: Entry in Focus on Ability Short Film Festival 2019
Fragile X is a 5-minute film which celebrates diversity, ability and achievement. You’ll meet primary school-aged twin brothers Zak & Ben, Tom, a teenager who loves music and art, and Zach, a young adult with a talent for business ideas.
FX Info newsletter June 2019
Family stories, the latest on drug trials for Fragile X syndrome, Australian research studies seeking participants, Fragile X awareness month in July, fundraising, events, and more!