FX Info newsletter June 2019
Family stories, the latest on drug trials for Fragile X syndrome, Australian research studies seeking participants, Fragile X awareness month in July, fundraising, events, and more!
News
End of Financial Year donations to help us support the Fragile X community
YOUR DONATION will help give us the capacity to continue providing support to the Fragile X community and effectively raising awareness of Fragile X-associated disorders.
Latest FX newsletter: March 2019
Our March 2019 newsletter includes: * Preview of our 30th birthday celebrations! *Tips for “back at school” resources for teachers who have children with Fragile X in their classroom
10 Things Teachers Need to Know about Fragile X
These ten things will help bring out the strengths of each child and minimize or improve some of their struggles they may encounter.
Bridge to Beach fundraiser: donations matched by Shaw and Partners
he annual Bridge to Beach paddle race from Sydney Harbour Bridge to Manly supports Fragile X Association of Australia. This year Shaw and Partners will help us reach our fundraising target of $10,000!
New Board 2018-2019
Following the Annual General Meeting of 11 November 2018, we welcome the new Board for 2018-2019 and in particular welcome two new volunteer directors, Kate McKeand and Wayne Pointon.
Annual Report 2017-2018
Each year our Annual Report is a great wrapup of the work we’ve been doing to increase awareness of Fragile X in the medical community, to provide support to individuals and families impacted by Fragile X, information about Fragile X-associated disorders, and to facilitate access to clinics.
FX newsletter: October 2018
Our news and events for 2018, to the end of October, in our latest newsletter, published today. Covering the visit to Australia by Prof Randi Hagerman, a new FXTAS clinic in Melbourne, a clinical trial in Australia, fundraising and family stories. And more!
FXTAS clinic in Melbourne
A Fragile X-Associated Tremor Ataxia Clinic has recently opened at AlfredHealth in Caulfield, Melbourne. The clinic offers help in the diagnosis and management of people affected with FXTAS, and also has a research focus.
Notice of Annual General Meeting 11 November 2018
Notice of Annual General Meeting of Fragile X Association of Australia Inc DATE: Sunday 11 November 2018 TIME: 2:00—3:00 pm PLACE: Fragile X Association of Australia, Suite 204, 20 Dale Street, Brookvale NSW 2100
The Latest on Fragile X | Dr Randi Hagerman in Melbourne 27 August & Sydney 3 September
Dr Randi Hagerman presented on the Latest on Fragile X – in Melbourne at the Royal Children’s Hospital on 27th August, and in Sydney at the Garvan Institute of Medical Research on 3rd September.
Annual General Meeting 2018 and Call for Board nominations
Our members and friends are invited to our 2018 Annual General Meeting.Date: Sunday 11 November 2018, 2:00-3:00pm Place: Suite 204, 20 Dale Street, Brookvale NSW 2100