Manly Wharf Bridge to Beach 2024 – supporting Fragile X

The Manly Wharf Bridge to Beach stands as one of Australia’s premier open water paddling events, celebrated globally for its breathtaking spectacle.  It's an 11 km paddle across Sydney Harbour, sponsored by Shaw and Partners Financial Services and  organised every year by Dean Gardiner and the team from Oceanpaddler.   Fragile X Association of Australia is thrilled to be charity partner for this event, raising funds for our important Family Support Counselling service.

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Our team and HelpLine will be back 15 January 2024

Our team will be back on deck from Monday 15th January 2024. We wish you all the best for the holiday season!

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FX Newsletter | December 2023

Wrapping up 2023 and a look at what's on our horizon for 2024! Our research study on Adults/Ageing and Fragile X syndrome. The Zynerba RECONNECT clinical trial extended to March 2024. Our webinar program for 2024. Disability Expos 2024. Congratulating the FXAA Achievement and Volunteer Award winners for 2023. And profiling online learning modules about intellectual disability & mental health; and sensory sensitivities in Fragile X syndrome.

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Fragile X Premutation Conference 2023 – Lived Experience Perspective Summary Paper

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FX Raffle Prize Winners – Announcement

Winning ticket numbers in the FX Raffle which was drawn at the office of Fragile X Association of Australia, Suite 204 20 Dale Street BROOKVALE NSW 2100 on Saturday 9 December at 11am.

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Toileting Strategies and Supports Across the Lifespan, Part B

With Dr Jennifer Epstein PsyD., from webinar recording December 2023. Communication, sensory, motor, physiology & cognitive delays are commonly associated with Fragile X syndrome. These delays can pose challenges for building toileting skills in childhood and retaining those skills throughout life. This session focuses on successful toileting skills development for children over the age of 10 and adults.

Fragile X Podcasts

Toileting Strategies Webinar, 2 December – focussing on older children and adults

This 2-part webinar with psychologist Dr Jennifer Epstein addresses challenges that many children and some adults with Fragile X syndrome can experience with toileting – as a developmental issue, an ongoing concern, or as a regression from time to time. On Saturday 2 December the focus is on older children and adults.

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Webinar recording | Toileting Tips & Strategies Part A (children to age 10) with Dr Jennifer Epstein

Psychologist Dr Jennifer Epstein presented research findings and key background information on toileting skill development in children to the age of 10 who have Fragile X syndrome. Dr Epstein addressed practical strategies which parents and carers can use to monitor and to assist progress with toileting skills.

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Webinar recording | Understanding Anxiety & Behaviours in Fragile X syndrome

Webinar recording from 11 November 2023 - Dr Marcia Braden PhD licensed psychologist speaking on Anxiety and Behaviours in Fragile X syndrome.   Addressing what lies behind the anxiety experienced by many children with Fragile X syndrome, how the anxiety impacts daily living, learning and behaviours, and practical strategies that can be put in place to best support the person with Fragile X syndrome.

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FXAA Annual Report 2023

Our Annual Report showcases our activities and programs throughout the 2023 financial year! Support, Education, Awareness, Advocacy, Fundraising, and more.

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Toileting Strategies and Supports Across the Lifespan, Part A

With Dr Jennifer Epstein PsyD., from webinar recording November 2023. Communication, sensory, motor, physiology & cognitive delays are commonly associated with Fragile X syndrome. These delays can pose challenges for building toileting skills in childhood and retaining those skills throughout life. This session focuses on successful toileting skills development for children to the age of 10.

Fragile X Podcasts

Understanding Anxiety & Behaviours in Fragile X syndrome

With Dr Marcia Braden PhD, psychologist, from a webinar recording from November 2023. Discussion of the significant impact Fragile X-associated anxiety has on daily living and on behaviours for children & adults with Fragile X syndrome. Practical tips and strategies for helping an individual to manage that anxiety and achieve successful outcomes.

Fragile X Podcasts