New Resources added to our documents for download section: Fragile X Syndrome Fact Sheet – Learn basic facts about fragile X syndrome. * Families and Fragile X Syndrome This booklet from the National Institutes of Health for parents and families explains fragile X, its causes, its symptoms and associated disorders, and its treatments. The booklet [...]

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) website includes a very useful section on Fragile X including: Facts about Fragile X Syndrome – which includes links to articles on Causes, Inheritance and Treatment (Therapeutic, Educational, Early Intervention) Associated Disorders Data & Statistics Articles Free Materials -downloadable fact sheets and booklets The video [...]

Written by Sue Bride My online life began primarily as a means to find out more about Fragile X, after my son was diagnosed in 1994. There was so little information available and even the paediatrician who diagnosed him knew only some of the physical signs to look for; just enough to send him for [...]

As well as keeping up with National Fragile X Foundation announcements and news on their website you can now follow their news via the new NFXF Twitter page FragileXnews If you would rather read the Twitter updates via a newsreader you can do so via the FragileX news feed. Website news feeds can also be [...]

I have just added a page to the site called “Video Clips” which can be found under the Resources Menu. The page includes links to YouTube videos on Fragile X Syndrome and we will update this as new ones are uploaded. If you know of any Fragile X videos or slide shows on sites other [...]